News from the Children's Cardiomyopathy Foundation - November 2017
CCF Announces 2017 Accredited Centers of Care
Thirty-three top medical centers have been designated as CCF Accredited Centers of Care. The new program recognizes medical centers that provide high-quality cardiac care and specialized disease management to children with cardiomyopathy. A complete listing of accredited centers is posted on CCF's website.
Center accreditation is based on self-reported hospital data, which is evaluated against CCF's center criteria and based on the volume of pediatric cardiomyopathy patients, variety of pediatric patient services offered, expertise in the treatment and management of pediatric cardiomyopathy, and affiliation with an academic research institution.
Information on each accredited center is available in a standardized format on CCF Connect, an online member community, to assist families with locating an experienced provider in their area.
Research findings from CCF-funded studies, including multi-center initiatives with the Pediatric Cardiomyopathy Registry (PCMR), continue to receive recognition in top-rated medical journals and at high profile medical meetings.
In the September issue of Circulation Research, a special cardiomyopathy compendium "Pediatric Cardiomyopathies" was authored by a team of PCMR investigators. The review article provided an overview of four forms of pediatric cardiomyopathy and the future direction of cardiomyopathy research. In addition, PCMR investigator Stephanie Ware, M.D., Ph.D. of Indiana University presented "The Genetic Architecture of Pediatric Cardiomyopathy" at the American Society of Human Genetics Meeting on October 20.
This fall, CCF sponsored several medical and family meetings to promote awareness of CCF's research grant program and family resources and services.
In September, CCF sponsored both the Southeast Pediatric Cardiology Society in Atlanta, Ga. and the Sarcomeric Human Cardiomyopathy Registry (SHaRe) meeting at Duke University in Durham, N.C. On October 14, CCF sponsored the Northeast Pediatric Cardiology Nurses meeting at Columbia University Medical Center. CCF also had a presence at the Westchester Cardiovascular Symposium on the same day at the Westchester Medical Center in New York. The symposium had a session on hypertrophic cardiomyopathy for patients and interested community members.
On November 14, CCF will be a sponsor of the Council on Cardiovascular Disease in the Young dinner at the American Heart Association (AHA) Scientific Sessions, the premier cardiovascular meeting in the world. This year, there will be six poster presentations based on CCF-funded research at the AHA conference in Anaheim, Calif.