November Updates
Patient Story

 Bekah was just two when she had her first RAS episode.

Read her story here .

Share your story today - email
Patients Day
Patients Day 2018 was a huge success, thanks to all of the wonderful patients and medical experts who travelled across the world to be there! This year, we had more patients attending than ever before, offered our biggest number of sessions yet, and grew our flagship event.

To improve upon this and grow Patients Day even further, we need YOU! Please email us with your thoughts and comments about Patients Day 2018, what you liked and what you didn’t. If you did not attend but would like to see something at next year’s meeting, please let us know! This is YOUR event, tell us how we can make it better for you!

Click on your chosen charity to read the full Patients Day Summary.


If you have not already done so, please complete your evaluation on your charity page.
Here are some quotes from this year's attendees!
Being able to switch between meetings was brilliant because it enabled me to hear about all the topics I feel I needed to hear.  
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This is the first time I have attended the patient day and I found it useful for information
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I feel it has made a real difference to my life after attending, I hope to come back next year.
The chance to meet other patients was invaluable
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I feel more confident about my anticoagulant decision after attending Patients Day
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It was interesting to hear other people's problems and to hear the answers to their health difficulties.
Please save the date for Patients Day 2019
Sunday 6 October
STARS Education Information Booklet

This booklet aims to inform and reassure you, to outline the ways a school can effectively manage a child with syncope/RAS. It also aims to provide you with the information, materials and support with which you can plan and then action a whole school strategy on the care and management of a child with syncope/RAS.

Click here to download.
Do we have a patient support group near you?

Artful Dodgers (London) Support Group - 8 November 2.00 -4.00pm
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Milton Keynes ICD Support Group - Thursday 22 November 10 am
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West Hertfordshire Support Group - Friday 23 November 2.00 - 4.00pm
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Bolton ICD Support Group - Thursday 29 November 7.00 - 8.30pm

If you have any questions about the support groups, please email  c.payne@heartrhythmalliance.org  

Click here to view our interactive map!
In the News

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