Women's Health Updates — November 2022

Learn about recent developments in women's health as well as SWHR's activities that promote the study of sex and gender influences on health and serve our mission to improve women's health through science, policy, and education.
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Women are disproportionately impacted by Alzheimer's disease, as both patients and caregivers. Two-thirds of individuals living with Alzheimer's in the United States are women, and the majority of Alzheimer's caregivers are women.

SWHR advocates throughout the year for research to improve our understanding of biological sex differences in Alzheimer's and changes across research, policy, and clinical care to improve women's health outcomes.

Read the NEW SWHR BLOG post featuring takeaways from the Alzheimer's Disease Working Group this year: "Identifying Policy Solutions to Improve Outcomes for Alzheimer’s Disease: Takeaways from an SWHR Roundtable Discussion" today.

Check out other SWHR highlights:

SWHR was saddened to hear of the passing of Eric Sokol, Vice President of Public Policy for the Alzheimer’s Foundation of America and a member of SWHR’s Alzheimer’s disease working group, last month. Eric passed away on Saturday, October 15, in Washington, D.C. Eric was highly engaged in the Alzheimer’s space, serving on the Leaders Engaged Against Alzheimer’s Disease (LEAD) coalition, the Leadership Council of Aging Organization, among others. SWHR was honored to have had the opportunity to work with and learn from him through his participation on the Alzheimer’s disease working group earlier this year. We extend our deepest condolences to his friends and family during this difficult time. 

Memorial contributions can be made in Eric’s honor to the Alzheimer's Foundation of America (alzfdn.org) or JGS Lifecare (jgslifecare.org). 
Caregivers may serve many roles, juggle several responsibilities, and face additional challenges as they care for themselves and their families. They are a powerful part of the health care system and make a world of difference for those they help. This #NFCMonth, explore caregiving stories like that of Tammy Anderson, who is a caregiver for her daughter living with narcolepsy, on the SWHR blog.

Do you have a caregiving story to share? SWHR wants to hear from you. Visit swhr.org/shareyourstory to learn more and share your caregiving experience.
Skin health is not just cosmetic; it can greatly impact a person’s physical and mental well-being. This Healthy Skin Month, hear from a panel of skin health experts in the More than Skin Deep: Understanding the Impact of Autoimmune Skin Diseases on Women’s Health webinar recording. #SWHRtalksSkin

Check out this series of autoimmune skin fact sheets:
The maternal and infant health crisis in the United States has begun receiving additional public attention, but there is still much to be done to advance health outcomes for parents and babies across the country. Read more about the state of preterm birth in the United States and steps for improving wellness on the SWHR blog.
This Giving Tuesday on November 29, 2022, consider giving to SWHR and help us reach our vision to make women's health mainstream. Visit swhr.org/donate to learn more.
What's on your mind this November? Share your women's health story with SWHR. SWHR is seeking stories about diagnoses, seeking care, and living with narcolepsy, lupus, psoriatic arthritis, menopause, Alzheimer’s disease, managing your bone health, undergoing prenatal screening, or other women's health conditions. Visit swhr.org/shareyourstory or click the link below to learn more.
SWHR Launches Narcolepsy Toolkit

Narcolepsy, characterized by persistent and excessive daytime sleepiness, an inability to regulate sleep-wake cycles, and for some, cataplexy, is a chronic sleep disorder. While narcolepsy symptoms often show up during adolescence, they may go undiagnosed for years.

Knowing the signs, symptoms, and management tips for narcolepsy can be life-changing for individuals impacted by narcolepsy. Download a copy of the "Narcolepsy Toolkit: A Woman’s Empowerment Guide" to learn some of these tips.

Read more about the toolkit on SWHR's blog: Narcolepsy Toolkit Strives to Make Women’s Sleep Health A Priority.

REGISTER for the November 9, 2022 webinar, "Narcolepsy & Women’s Health: A Wake-Up Call."

Do you have a narcolepsy story to share? Share your health story with SWHR. Visit swhr.org/shareyourstory to learn more.

What is SWHR reading? "Lack of Sleep Linked to Increased Risk of Developing Lupus Among Women" by the Lupus Foundation of America examines study results related to sleep health and lupus development. Stay tuned to learn more about lupus risks and symptoms in SWHR's upcoming Lupus Toolkit!
SWHR Released Psoriatic Arthritis Toolkit

Psoriatic arthritis (PsA) is an immune-mediated inflammatory disease that causes inflammation in the joints, resulting in stiffness and pain.

To support the ongoing care and management of this chronic condition, SWHR released the "Psoriatic Arthritis Toolkit: A Woman’s Empowerment Guide" for women living with PsA. Download your copy today!

REGISTER for the November 16, 2022 webinar, "Psoriatic Arthritis: A Woman’s Toolkit to Soar Above the Pain."
Hear more PsA wellness tips directly from patient advocates in the October webinar recording, "Psoriatic Arthritis: More than Just Sore Joints."

Check out more takeaways from the discussion on social media at #SWHRtalksAutoimmune and #SWHRtalksSkin.
Do you have a skin health or autoimmune health care story to share? Share your story with SWHR. Visit swhr.org/shareyourstory to learn more.
Join Medscape Education for this two-day event covering a wide variety of women's health topics, from maternal health to sexual health and endometriosis on November 9-10, 2022. Use code SWHR20 to get 20% off your registration!

Medscape Education will donate a portion of the proceeds to SWHR. SWHR is not involved in the development of content for this conference. Read more about the event in this press release.

Tune in as experts discuss diagnosis and care management tips for women living with narcolepsy from SWHR's new narcolepsy toolkit, on Wednesday, November 9, 2022, 2:00 p.m. ET. Follow along with the conversation on social media at #SWHRtalksSleep.

This virtual conference series by the Women’s Health Research Cluster aims to create a blueprint for hormonal contraceptives research and bring attention to the brain health issues in women. Join the November 10, 2022 meeting and save the date for future events.

Join SWHR on Monday, November 14, 2022, 1:00 p.m. ET to discuss how different stakeholders can and are taking steps to improve Alzheimer's outcomes and reach diverse and underserved communities. See more on social media at #SWHRtalksAlzheimers.

Hear experts in psoriasis and psoriatic arthritis walk through the new PsA toolkit for women and share tips for wellness management on Wednesday, November 16, at 1:00 p.m. ET. Follow the conversation on social media at #SWHRtalksAutoimmune and #SWHRtalksSkin.
Check out SWHR's event calendar for more SWHR and other women's health events.
In 2019, SWHR conceived a set of principles to help ensure value frameworks and assessments reflected factors relevant to women in the ongoing improvement of their health. This year, SWHR has revisited and updated this framework to reflect the ongoing shift in how the U.S. health care system delivers and pays for care and incorporate new factors that are relevant for women: SWHR’s 2022 Health Care Value Assessment Principles

Read more about the updated Principles on the blog: SWHR Releases Updated Health Care Value Assessment Principles.
Additional Policy Updates

  1. SWHR Sends Welcome Letter to NCI Director Bertagnolli: SWHR welcomed Dr. Monica M. Bertagnolli as the 16th Director of the National Cancer Institute (NCI), part of the National Institutes of Health (NIH). She is the first woman to hold the position.
  2. SWHR Provides Public Comments at NCCIH Stakeholder Meeting for Research on Whole-Person Health: SWHR’s comments focused on the need to think about women’s health and related research across the lifespan.
  3. SWHR Responds to NIH RFI on NIH-Wide Strategic Plan for Research on the Health of Women: Did you already read SWHR's comments on including women's health research in the next NIH strategic plan? Check them out here.

Learn more about SWHR's policy work here.

What is SWHR reading? "Correcting an historical failure in women’s health" by Physics World explores the intersection of women's health and material science and why studying women's health will help advance the fields of science and medicine. Learn more about the inclusion of women in health research in SWHR's Timeline.

Members of SWHR's Alzheimer's Disease Working Group met this year to discuss gaps in research and opportunities to improve care for individuals impacted by Alzheimer's. Read the conversation highlights.

Panelists throughout the Value of Diagnostics within Women’s Health series this year repeatedly highlighted the power that early screenings can have on health outcomes and well-being later in life.

“People in the United States still believe in public health,” said Erica DeWald of Vaccinate Your Family while discussing COVID-19 and HPV vaccine uptake during a recent SWHR network meeting. Read the meeting summary.

SWHR President and CEO Kathryn Schubert joined other health care experts to make recommendations for advancing data systems and data equity. Read the transcript in the Health Equity journal.
Read all of SWHR's most recent blogs online here.

Have something you think SWHR should read? Reply to this email or tag us on social media with @SWHR to make sure we see it!

What's new in Biology of Sex Differences? Explore the developmental trajectory of sex-biased gene expression in the pituitary. Find more at @BiologySexDiff.
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