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For National Nutrition Month, we turned to our Frequently-Asked-Questions page for a timely Q&A.
Q: Is there any special diet for people living with chronic hepatitis B infection?
A: Eat a healthy, well-balanced diet, and get regular exercise. When possible, choose whole foods fresh vegetables, fruits, whole grains, plant-based proteins (like tofu, grains, and peanuts), fish and lean meats. Learn more here.
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First-person stories from people living with hepatitis B | | |
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Cosmin was diagnosed with hepatitis B as an infant. In this new blog, posted here, he shares his challenges with accessing medical care for hep B in Romania and coming to terms with his diagnosis. | Join our community of informed readers who are committed to staying in the know! Subscribe to our Blog here. | |
#BtheVoice Featured Storyteller: Philip | | |
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Philip's brother faced health challenges in 2017 and passed away due to hepatitis B, leading Philip to campaign against the disease.
You can find Philip’s story here.
| Are you interested in telling your story of how hepatitis b has affected your life? We want the hear from you. Lear more here. | |
Hepatitis D testing now offered by second major U.S. lab | |
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Click here to access the antibody test.
For any questions or more information, please contact beatrice.zovich@hepb.org.
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We have encouraging news regarding hepatitis delta testing for individuals who test positive for hepatitis B.
The test for hepatitis delta antibody (anti-HDV), which can indicate if someone has ever been exposed to the hepatitis delta virus in the past, is now available at LabCorp! Previously, these tests were only available at Quest Diagnostics, thus excluding about half of the commercial laboratory market in the U.S.
Unfortunately, the hepatitis delta RNA test, which is used to confirm an active and current infection, isn't available at LabCorp yet, but it hopefully will be later this year.
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Are you working on hepatitis B in Africa? | |
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The Hepatitis B Foundation and SCOLDA are collaborating to identify partners across Africa working on hepatitis B.
This survey is meant to gain a better understanding of where there are gaps that need to be filled and how to best work to address these gaps.
More information and the survey itself are posted here.
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Are you a runner? Join the Run4HepB Team! | | |
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Make miles matter this November by joining the Hepatitis B Foundation’s TCS New York Marathon Official Charity Partner Team.
We hope you'll make your miles matter and Run4HepB… apply today!
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All RUN 4 HEP B team members will receive:
- Guaranteed race entry for the 2024 TCS New York City Marathon
- A personalized fundraising page to collect online donations
- Fundraising support and guidance
- Team branded gear and more!
Note: there is a $3,650 fundraising minimum to join our Run4HepB team.
Already have guaranteed entry? You can still join us! Runners who have already secured entry via lottery or qualifying time can receive all the benefits mentioned above by fundraising on behalf of Run4HepB.
Interested in running? Email us at run4hepb@hepb.org for more information.
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The Hepatitis B Foundation is hosting the B Informed Patient Conference, a free event in collaboration with the Sidney Kimmel Cancer Center at Thomas Jefferson University, in Philadelphia on Saturday, July 27, from 9:00 a.m. - 1:00 p.m.
The conference, honoring World Hepatitis Day, will bring people with lived experience together to get information, ask questions and learn about all things hepatitis B.
There is no charge; breakfast and lunch will be served. There will be many opportunities for networking and meeting providers! Registration is required to secure your spot. You can use the website or email catherine.freeland@hepb.org or call 215-489-4900.
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Updates to our "B Informed Training Hub," open to everyone! | |
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The Hepatitis B Foundation and partners have launched a cost-free training website, the "B Informed Training Hub,” for people who want to learn more about hepatitis B and hepatitis D.
This site provides training, education and resources on hepatitis B, hepatitis D and liver cancer for anyone who wants to learn more. Everyone is welcome!
We've just updated these lesson, here.
- What Is Hepatitis B?
- Acute vs Chronic Hepatitis B
- Hepatitis Delta 101: All the Basics on Hepatitis Delta Virus (hep D or HDV)
- The Link Between Hepatitis B and Liver Cancer
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New phase 3 clinical trial opportunity for
people living with chronic hepatitis B
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Check out this new clinical trial opportunity! GlaxoSmithKline (GSK) is launching two phase 3 studies called B Well-1 and B-Well-2, which will test an experimental drug (bepirovirsen) as a potential treatment for hepatitis B.
Phase 2 clinical trial results showed that 24-weeks of treatment with bepirovirsen resulted in reduced HBsAg and hepatitis B virus (HBV) DNA. To participate in the new phase 3 B Well studies, people need to be at least 18 years old (although the minimum age requirement may be higher in some countries); have a documented hepatitis B infection for the last six months; and have been on antiviral therapy with a nucleoside/nucleotide analogue (NA, such as tenofovir or entecavir) for at least 6 months.
In the phase 3 B Well study, participants will be randomized into different study groups. Some people will be given bepirovirsen to add to their current NA, to see if this results in greater reduction of HBsAg and HBV DNA – and to see if this reduction is sustained after treatment ends. Some people will receive a placebo. The study is being run in many countries around the world. To find out more information and see if you might be eligible, please visit www.bwellstudy.com.
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Physicians: Consider a listing in our Physician Directory | | |
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Are you a physician who manages hepatitis delta patients?
Please sign up for our Physician Directory today!
This online database allows people who are living with hepatitis B and hepatitis delta from around the world to locate a physician near them.
Finding a doctor for hepatitis delta can be difficult for many folks, so help make more people aware of your services and register! Sign up here.
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B Heppy Podcast: Highlights from the International HBV Meeting | |
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B Heppy is a podcast aimed to inform and help individuals living with hepatitis B through discussing various topics related to hepatitis B.
In this episode, Ed Tate, communications director at the Hepatitis B Foundation, interviews scientists and researchers at the 2023 International HBV Meeting in Kobe, Japan.
Access it here.
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New fact sheets in nine languages | |
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We've created printable fact sheets to educate the public on hepatitis delta. There are long-form and short-form fact sheets plus one designed for providers.
Topics range from hepatitis D testing and management, to treatments and clinical trial opportunities. Materials have been translated into English, Spanish, Russian, Romanian, Mongolian, Igbo, Yoruba, Hindi and Urdu. They're posted here.
Learn more: www.hepdconnect.org.
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Journal article of the month | |
Experience and impact of stigma in people with chronic hepatitis B: a qualitative study in Asia, Europe, and the United States
Toumi M, Wallace J, Cohen C, Marshall C, Kitchen H, Macy J, Pegram H, Slagle A, Gish R, Ning Q, Yatsuhashi H, Cornberg M, Brunette M, van Bommel F, Xie Q, Lee D,
Habuka N, Sbarigia U, Beaumont-Mauviel M, Villasis Keever A, Takahasi Y, Lu Y, Liu A, Chen Q, Ito T, Radunz O, Puggina A, Hilgard G, Chan E, Wang S
[Link to article]
BMC Public Health
28 February 2024, Article #611 2024
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For this study, 63 people in five countries (China, Germany, Italy, Japan and the U.S.) who are living with hepatitis B were recruited for interviews about 90 minutes each. The individuals were ages 25 to 71. After analyzing the results, the authors concluded that: "CHB-related social and self-stigma are widely prevalent and affect many aspects of life. A functional cure for hepatitis B may reduce social and self-stigma and substantially improve the health-related quality of life of people with CHB. Incorporating stigma into guidelines along with infectivity considerations may broaden the patient groups who should receive treatment." | |
Learn more about our research and education programs at www.hepb.org
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The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and improving the quality of life for those affected by hepatitis B worldwide. Our commitment includes funding focused research, promoting disease awareness, supporting immunization and treatment initiatives, and serving as the primary source of information for patients and their families, the medical and scientific community, and the general public. | | | |
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Hepatitis B Foundation I 3805 Old Easton Road | Doylestown, PA 18902
215-489-4900 I info@hepb.org
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