Washington Days REGISTRATION DEADLINE is January 15th, 2024.

Join the HFM Red Tie Team as we head to Capital Hill

to advocate for the Bleeding Disorders Community. Registration is FREE and HFM will sponsor a limited number of hotel rooms for families who reside 30 plus miles from Washington DC.

Plus, this is great opportunity for children to learn how to advocate!

The National Bleeding Disorder Foundation (NBDF) is sponsoring Washington Days in Washington DC from March 6 - March 8, 2024. DEADLINE TO REGISTER IS JANUARY 15th, 2024 and we are encouraging a strong presence from the HFM community.

The National Bleeding Disorders Foundation's Washington Days is an opportunity for people affected by inherited blood disorders to advocate at the federal level for issues that are important to them. We are looking forward to gather together in person with hundreds of volunteer advocates from across the United States to meet with legislators and staff to discuss issues important to our community such as federal funding for bleeding disorder programs and supporting policies that increase affordability of coverage, and access to care. 

The issues at Washington Days 2024 will include:

Bleeding Disorders Awareness (March is our month!)

Federal Funding for Bleeding Disorders Program

S. 1375 / H.R. 830 "Help Ensure Lower Patient (HELP) Copays Act

HFM will sponsor a limited number of complimentary hotel rooms at the Hyatt Regency Washington on Capitol Hill for HFM members to attend this event. If interested, please register using the link below and contact HFM IMMEDIATELY via email at info@hfmonline.org regarding your hotel accommodations. Children are welcome and encouraged to attend! The future of the bleeding disorders community depends on our youth advocates.

Mark your calendars and RSVP today for an exceptional evening of learning, networking, and community engagement at the upcoming HFM Annual Meeting and Family Educational Dinner Night! Join us on Saturday, February 3, 2024, at 6:00 p.m. at the Westin Annapolis for an enriching experience. Indulge in a delicous dinner while connecting with friends and exploring the latest treatment trends and specialty pharmacy services offered by our vendors. Get firsthand updates from the Johns HTC Team, unveiling the new Women's Clinic and introducing a fantastic addition to HTC nursing team. Notably, CSL Behring Patient Advocate, Krissy M., will share invaluable insights on "Do Your Own Research and Take It to Your Doctor." Moreover, this year, we have an exciting addition: the teen lounge (ages 12 and up), along with the new tween lounge (ages 7-11), and engaging children's programming for ages 0-6. Don't miss this opportunity to gather, learn, and grow together as a community. We hope to see you there!

Join HFM for Maryland Advocacy Training Day and Legislative Visits in Annapolis on Monday, February 19, 2024, from 9 a.m. - 4 p.m. (may end earlier depending on the time of your legislative appointment).

HFM will convene at the Westin Annapolis for a continental breakfast and an in-depth advocacy training. We will then transition to advocacy role play before breaking for lunch and proceeding to the State House for appointments with your legislative representatives. Your voice is crucial. A children's training program will also be available. As February 19th is a school holiday, this is a great opportunity for children to learn how to advocate at an early age.

Agenda:

- Continental breakfast and in-depth advocacy training at the Westin Annapolis

- Advocacy role play

- Lunch break

- Travel to the State House for appointments with legislative representatives

**Note:** We have a limited number of hotel scholarships available for attendees residing more than 30 miles from Annapolis and who would like to attend. Travel vouchers are also available to participating families.

Key Issues:

- Copay accumulators

- Formulary hemophilia drug exclusions

- Freedom of specialty pharmacy choice

- MVP Act to facilitate Maryland medical assistance patients' access to gene therapy

This year's advocacy is incredibly important, and your involvement can make a significant difference. Your voice matters!

Important Summer Camp Update!

Please Read Carefully!!

Join the Hemophilia Foundation of Maryland for the hottest event of the year: our Annual Bull, Beer & Oyster Roast on Saturday, March 16th, 2024, from 7-11 pm at the UAW Hall, 1010 Oldham, Baltimore, Maryland 21224. (You must be 21 or over to attend.)Tickets are priced at $50 each and include a delightful menu featuring Raw Oysters, Top Round Beef on the Pit, Roasted Turkey Breast, Sweet Italian Sausage, Homemade MD Crab Soup, Baked BBQ Chicken, Assorted Salads & More! Enjoy unlimited Beer & Soda throughout the evening.

This exciting event will also feature music by Maroon Sounds and a 360 photo booth from Sassy Stylz. Additionally, indulge in our fabulous silent auction! Hurry, secure your tickets today as this event sells out every year!

Purchase tickets:

1. Via Venmo @hfmonline
2. Via cash app at $hfmonline
3. Mail payment to HFM, 13 Class Court, Parkville, MD 21234
4. Purchase tickets via eventbrite (Note: tickets purchased on eventbrite include a processing fee). Visit: http://tinyurl.com/HFMBullRoast2024