The SRF helping to identify volunteers who may wish to serve on a Patient Advisory Board for one of our pharmaceutical company partners. Their goal is to better understand the patient experience from initial symptoms through diagnosis and treatment in order to identify the unmet needs of systemic sclerosis patients.
This Patient Advisory Board will be made up of approximately 10 people who are able to attend an in-person meeting in New Jersey on December 14, 2022. Patient participants will receive compensation for their time, meals, travel, and hotel.
Qualifications: Patients must be age 35+, have early stage SSc (preferably less than 5 years since diagnosis or symptom onset), and have some form of vascular involvement (digital ulcers, pulmonary hypertension, etc.).
If you are interested in this opportunity and would like to learn more, please email us by Monday Oct. 17th! Be sure to include your age, SSc diagnosis date, related vascular complications, home city/state location, and phone number in your message.
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