Dear , 
We wanted to remind you about TeamMPN, a fun and interactive way to contribute to MPN research! Pick an event or host a party, and have people make donations to MPN Research Foundation in your honor. Click here to learn more today

Today the National Comprehensive Cancer Network (NCCN) releases their MPN Patient guidelines. You can obtain an electronic copy here, download as a PDF, or purchase through Amazon. The MPN Research Foundation decided to contribute to the sponsorship of these guidelines because too often we speak to people with an MPN who are treated by doctors without sufficient experience treating other MPN patients and who are not as well versed in latest treatments and research as they can be. With these guidelines we hope that patients everywhere will have a better chance at meaningful communication with their physicians and a chance to better advocate for themselves. 

We're also sharing news about some new clinical trials that are currently recruiting patients. There are dozens of clinical trials ongoing for MPN now, and we are eager to see additional options for people with ET, PV and MF now as we pursue truly breakthrough and even curative options through our research programs. 


Michelle Woehrle
Executive Director
MPN Clinical trials now recruiting!

Enrolling: Polycythemia Vera patients who are resistant/ intolerant of Hydroxyurea

Drug: Idasunatlin 
Company: Roche 

Study name:  A Phase II, Single-Arm, Open-Label Study to Evaluate the Efficacy, Safety, Pharmacokinetics and Pharmacodynamics of Idasanutlin Monotherapy in Patients With Hydroxyurea-Resistant/Intolerant Polycythemia Vera

Enrolling: Myelofibrosis patients who are not candidates or don't qualify for Ruxolitinib

Drug: Sl-401
Company: Stemline Therapeutics

Study name: SL-401 in Advanced, High Risk Myeloproliferative Neoplasms (Systemic Mastocytosis, Advanced Symptomatic Hypereosinoophic Disorder, Myelofibrosis, Chronic Myelomonocytic Leukemia)  

Join us at an upcoming event

Put your data to use!
Let how you're feeling today contribute to our understanding of MPN and learn something about patients like YOU by participating in myMPN today! If you've already taken the initial survey, log back in to tell us how you're feeling today. Click here to take part.

MPN Education event October 24th in Atlanta 
Learn from MPN experts about transplant, treatment options, how to live your best life with MPN and more.

9TH International Patient Symposium on MPNs
Wednesday, Nov 1, 2017
Griffis Faculty Club, Weill Cornell Medical College
521 East 68th Street  New York, NY  10065

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