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We’re closing out October with gratitude and renewed momentum after an incredible month of advocacy, education, and connection. Last week, Accessia Health staff and patient advocates took to Capitol Hill for our 2025 Advocacy for Access Day. Together, we urged for support for policies that protect patients from harmful coverage barriers and that ensure financial assistance counts toward their care. A full recap will be featured in our upcoming Advocacy and Policy newsletter, so be sure to subscribe on our website to read more.
Our three-part webinar series, "Knowledge in Action: Hemophilia Care Series," brings together patients, advocates, and healthcare professionals to address critical issues in emergency response, care transitions, and access for individuals and families affected by bleeding disorders.
Finally, we’re pleased to welcome James Johnson as Executive Vice President of Operations and Alan Wood as Executive Vice President of Development and Growth to the Accessia Health leadership team. Their decades of experience across healthcare and nonprofit sectors will strengthen our mission and advance equitable access to care for all.
As we look ahead to the rest of the year, I’m grateful for your continued partnership and engagement. It was clear from our initial feedback of Advocacy for Access Day that the impact we're making is being felt across the country. Thank you for being a part of our mission.
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On Wednesday, October 15th, Accessia Health staff members and patient advocates took to Capitol Hill for our 2025 Advocacy for Access Day. Our message was clear: patient access matters. Together, we voiced our support on key policy priorities, urging lawmakers to advance legislation that protects patients from harmful coverage barriers and ensures assistance counts toward their care.
Thank you to our patient advocates for taking time out of their schedules to attend and share their stories on how the work of Accessia Health has helped them alleviate the financial stress that comes with having a rare disease or chronic condition. With the progression of key bills focused on reducing barriers to care and improving affordability for patients, your voices have never been more important.
We'll be doing a deeper recap into our Hill Day experience in our upcoming quarterly Advocacy and Policy newsletter. Take a minute to subscribe on our website below.
| | Register for our upcoming webinars "Knowledge In Action: Hemophilia Care Series". Partnered with the National Bleeding Disorders Foundation, patients, advocates, and healthcare professional attendees will focus on addressing critical care issues, strategies on providing for individuals and families affected by bleeding disorders, and how to navigate the healthcare system as an advocate for change across three sessions. | | SESSION 1: TUESDAY, OCT. 28 | 2PM | This session will review emergency protocols, triage strategies, and real-life case studies to support safer care during high-risk situations. | | SESSION 2: THURSDAY, NOV. 6 | 2PM | This session explores diagnostic and treatment protocols, barriers to continuity, and unique challenges faced in Puerto Rico’s healthcare system. | | |
We are excited to welcome James Johnson as EVP of Operations and Alan Wood as EVP of Development and Growth to Accessia Health’s leadership team.
With decades of experience across healthcare and nonprofit sectors, Alan and James bring the knowledge and commitment needed to strengthen our mission and advance equitable access to care.
Learn more about the expansion of our leadership team and the launching of our advisory councils below.
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Medicare Open Enrollment is NOW LIVE! From October 15th to December 7th, Medicare beneficiaries can elect to make changes to their Medicare health plans and prescription drug coverage for the following year to better meet their needs.
To maximize open enrollment success, review the three "C"s: Consider current needs and benefits; Compare plan options; and Choose to enroll in benefits within the designated time frame.
For more information about enrollment, check out resources from KKFF below.
| | WATCH: Helping Patients Navigate Challenges | | Families are stretched thinner than ever—facing rising premiums, copays, and long wait times for care. In our recent WTVR interview, Tiara Green shares how we’re helping patients with challenges related to financial assistance, legal aid, and personalized support. | | Your Experience, Your Story | | | |
Submit Your Patient Experience
Your story could be the spark that inspires hope in someone else’s healthcare journey. Whether you’ve faced challenges with treatment costs, access to care, or navigating your condition, your experience matters — and it can make a difference.
Share how Accessia Health’s support has helped you overcome barriers and find relief through our programs. Together, we can turn stories of struggle into stories of strength.
| | | Accessia Health, a national charitable patient assistance organization, is dedicated to eliminating healthcare barriers for people with rare or chronic health conditions. Comprehensive services include personalized case management, financial assistance, education, and legal aid support. Our flexible funding model goes beyond copays, allowing individuals to pay for other essential medical expenses including insurance premiums, screening and diagnostics, therapy services, travel costs and more. Accessia Health works to ensure that every individual has access to the care they need to lead a healthier life. | | |
Accessia Health exists because of generous donations from our community.
Consider making a gift to provide health and hope to patients nationwide.
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