ABP Roadmap Email Header _2_.png

Friends of Roadmap Update | July 2022

U.S SUICIDE & CRISIS LINE LAUNCH | ROADMAP COLLEGE WEBINAR | DEVELOPING A RESOURCE LIST | COLLABORATING WITH PATIENTS & PARENTS

Dear Friend of Roadmap,


We are excited to share this special summer update with you about the latest happenings with The Roadmap Project and to spread an important update about the U.S Suicide & Crisis Lifeline.

U.S. Suicide & Crisis Lifeline Accessible by Dialing 988

Starting July 16


Since 2005, the Lifeline (1-800-273-8255) has answered tens of millions of calls to help people overcome mental health-related distress. The new three-digit dialing code 988, available via call or text, will start connecting individuals to trained counselors on July 16. Chat is also available online at www.suicidepreventionlifeline.org 


Using 988 is free, confidential and available 24/7. It is more than just an easy-to-remember number — it’s a direct connection to compassionate, accessible counselors who will listen to concerns, provide support, and get additional help if needed. 


The 988 dialing code is just a first step toward strengthening and transforming crisis care in the U.S. It serves as a universal entry point so that no matter where you live, you can reach a trained crisis counselor who can help.

Learn more at: www.samhsa.gov/988

Roadmap College Webinar Series Continues


The Roadmap Project's six-month series designed to address patient and family emotional health continued with Webinar #2 on June 9.


Roadmap College brings together 16 clinical teams from the National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) and the Fontan Outcomes Network (FON). In the second webinar, teams discussed how to identify resources and make them available.


Guest speaker Stacey Lihn is a parent of a child with Hypoplastic Left Heart Syndrome, Founder and President of Sisters by Heart, and NPC-QIC and FON Executive Leadership Team member. Stacey shared about the importance of making peer-to-peer connections, which is a key part of Sisters by Heart's work.


Stacey said, "people gravitate toward peer support because of its humanizing effect on our challenging health care system. And we love that it provides that personal connection to better understand physical and emotional impacts of chronic illness and it is 100% patient-centered . . . peer-to-peer supports looks different for everyone, but that feeling of validation and understanding by someone who has walked in your shoes -- we learn from each other and gain tools to live healthier lives as parents, patients, and siblings."


Dr. Jill Plevinsky is a Pediatric Psychologist at Children's Hospital of Philadelphia and Founder of the Improve Care Now Patient Advisory Committee. Developing a guide for finding resources for patients, families, and clinical teams, Jill highlighted five steps to take to get started:

  1. Ask around for existing resources - you may not need to reinvent the wheel!
  2. Organize your resource guide by audience
  3. Include patient/parent partners in developing materials
  4. Consider how you can keep your list updated
  5. Test it out! And ask patients/and families if they were successful in using the resource


Learn more about how Roadmap can help you build a resource list below. Roadmap College continues with Webinar #3 later this month.

Learn More About Roadmap College

Roadmap Resource Highlight

Template: Developing a Resource List


Patients and parents working with The Roadmap Project have repeatedly stressed you don’t have to be a mental health professional to make a difference. Yet, sometimes families will need more support than a physician or subspecialty team can provide.


This tool was designed in collaboration with patients, parents, and clinicians to help you think through creating, updating, or expanding an existing list.


Click the link below to access the document to help you get started today.

Download the "Developing a Resource List" Template

Roadmap Hosts its Second Patient Parent Advisory Group

Integrating patient and parent voices in everything we do is vital to helping The Roadmap Project successfully address emotional health for patients and families with chronic conditions. Roadmap hosted its second Patient & Parent Advisory Group call on June 16. 


Exciting outcomes such as the "Developing a Resource List" Template described above have been a result of this group's recommendations, and we are eager to share with you what is coming next!


Members of the group previously asked Roadmap to build a resource for patients and parents to share with organizations they have existing connections with. One group member said, "Where is the template for me to copy and paste and say, "Roadmap already exists. You should implement this." And another added, “We have a lot of social connections and networks . . . How could I learn a little bit more about mental health, harvest that, and share it back with the pediatric community so the next mom who stands in my shoes doesn't have to reinvent the wheel?”


Stay tuned as Roadmap continues to collaborate with patients and parents to bring this next resource to life.

Thank you for being part of our Roadmap family. We look forward to continuing our partnership with you.


All the Best,

The Roadmap Project

[email protected]

www.roadmapforemotionalhealth.org

ABP Foundation Logo _MASTER_ black - Medium 140_ _002_.png

The Roadmap Project is made possible with support from the American Board of Pediatrics Foundation and the David R. Clare and Margaret C. Clare Foundation.