OpenNotes Gets Boost from McGovern Foundation for AI in Patient Care
The Patrick J. McGovern Foundation (PJMF) awarded a $200,000 grant to OpenNotes to investigate how artificial intelligence (AI) can further propel health information transparency and open communication between patients and their clinicians. This funding will support the OpenNotes Lab and initiate exploration into the evolving landscape of AI in healthcare by focusing on how patients use and comprehend clinical documentation. Read more.
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Chethan Sarabu, MD, and Amanda Norris, MDiv, of the OpenNotes Lab | |
The Importance of Shared Access Features in Online Patient Portals: Insights from Recent Research
Two recent publications suggest the full potential of patient portals are not realized until shared access features are more broadly promoted to patients. Shared access allows care partners to participate in a patient’s healthcare securely and effectively. Learn more.
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Deb Wachenheim, MPP, and Liz Salmi, authors of two publications on "shared access" | |
BIDMC Awarded $30 Million by PCORI for Large Study on Cardiac Implantable Electrical Devices
Beth Israel Deaconess Medical Center was awarded $30 million in research funding by the Patient-Centered Outcomes Research Institute (PCORI) for a large study on management strategies for patients with pacemakers and implantable cardioverter-defibrillators (ICDs). Collaborators from OpenNotes will work with Daniel B. Kramer, MD, MPH, and his team to explore patients’ and clinicians’ experiences throughout the study and analyze the data. Read more.
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New OpenNotes Publications | |
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Gaps in The Coordination of Care For People Living With Dementia (paywall)
Kern LM, Riffin C, Phongtankuel V, Aucapina JE, Banerjee S, Bell SK, Casale PN, Fisseha S, Meiri H, Ringel JB, Tobin JN. Gaps in the coordination of care for people living with dementia. Journal of the American Geriatrics Society. Published online July 29, 2024. doi:10.1111/jgs.19105
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Overcoming Systemic Barriers to Make Patient-Partnered Research a Reality (open access)
Venkataraman V, Martin-Giacalone BA, Drake BF, Salmi L, Claus EB, Schuster ALR, Bridges JFP, Lenz HJ, Willman CL, Diehl D, Janeway KA, Mack JW, George S. Overcoming systemic barriers to make patient-partnered research a Reality. Journal of Clinical Oncology. Published online August 2, 2024. doi:10.1200/jco.24.00347
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Improving The Ethics of Medical Transparency (KCBS Radio Bay Area)
A bipartisan law promotes transparency by giving patients easy access to their medical records, but some feel this instant access can be harmful when receiving devastating health diagnoses. KCBS Radio interviewed Dr. Cait DesRoches of OpenNotes to explore the impact of this shift on patient care. Listen to the interview.
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Pulse Podcast Interview: "What Happens When Patients Get Test Results Before Doctors?" (Australia)
Drs. Louise Schaper and George Margelis talk with Liz Salmi at Beth Israel Deaconess Medical Center about OpenNotes research, patient advocacy, and what happens when patients get bad health news from reading it in online first. Listen in Apple Podcasts.
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AEON: "We Need the Firsthand Experience of Disabled Researchers”
According to an editorial in AEON, medicine has long ignored the valuable insights patients have into their own diseases. This article advocates for clinicians and researchers to listen. Read more.
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