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Our New Website is LIVE!

CYSHCNet.org has been updated!


In addition to a new look, we have updated our home page to help make our work accessible to people outside of academic medicine.


We will continue to update how our research is presented on this site.


In addition, we are looking for contributors to our blog!


To offer feedback and/or to write for CYSHCNet, contact Carie at carie@cyshcnet.org.

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Partner Spotlight

Advice for Considering Culture from Family Partner Elisa Aucancela


“Imagine you’re a single mom, just doing what you need to do to survive. And then somebody asks, ‘How are you?’ or ‘How’s your mental health?’ when you’re in the fire of survival mode. The women I work with might say, My mental health? I do what I need to survive..."

Elisa is a family partner and executive director of El Grupo Vida, a nonprofit network of Hispanic/Latino parents. She hopes to help researchers better understand the importance of cultural competency and humility, reminding us that there’s more to this work than simply translating language. It’s about effectively operating in different cultural contexts, and altering practices to reach different cultural groups.

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Network News

Share this Link to Help Others Engage with the National Research Agenda

CYSHCNet developed an interactive learning platform based on our national research agenda on health systems. It describes and provides guidance on how to implement elements of the national health systems research agenda developed by CYSHCNet in 2019-21. It is easy to navigate and provides challenges you may face, tips on organizing the study, and examples of potential projects.

National Research Agenda Learning Platform

LANGUAGE: This project is supported by CYSHCNet, which is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under UA6MC31101 Children and Youth with Special Health Care Needs Research Network. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS, and the U.S. Government.

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CYSHCNet is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under UA6MC31101 Children and Youth with Special Health Care Needs Research Network. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS, and the U.S. Government. Website

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