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Spring 2023

Dear Liz,


Midway through the year is always a great time for me to stop and reflect on what we’ve accomplished and what’s still ahead for us as we work to support underinsured people. This year, PAN’s commitment to helping patients get access to affordable, equitable healthcare has only grown. And through our thought leadership at key conferences and events this summer, we plan to continue educating a wide range of audiences about these important topics.


Coming up on June 22, PAN’s President and CEO, Kevin L. Hagan, will participate on a health equity panel as part of The Hill’s Future of Health Care Summit. This free event, being held both in-person in DC and online, will be headlined this year by Dr. Anthony Fauci, former Director of the National Institute of Allergy and Infectious Disease at the National Institutes of Health, and Dr. Atul Gawande, Assistant Administrator for Global Health at USAID. We hope to see you there! 


Later that same day (June 22), and in partnership with CVS Specialty, we are hosting the second webinar in our four-part Health Equity in Action webinar series. During this free webinar, providers and patient advocates will learn more about the prevalence of mental health disparities in underserved communities and how to implement effective strategies to mitigate barriers and promote access to mental health care for all individuals.

 

In addition to these upcoming events, I’ve also enjoyed connecting with many of you at conferences where we've attended, exhibited, and spoken at. You may have recently heard Kevin speak at Reuters Pharma USA 2023, Asembia’s AXS23, and Informa Patient Assistance Programs about the continued need for patient assistance, despite the recent Medicare reforms included in the Inflation Reduction Act. And as we continue our commitment to rigorous compliance and ethical behavior, our Chief Compliance and Privacy Officer, Mia Harmon, spoke at Informa Pharmaceutical Compliance Congress.  


But we’re also busy beyond just events. Importantly, later this summer we’ll be re-evaluating PAN’s funding model based on key Medicare reforms taking effect in 2024. We hope to share more information with you about these changes in the coming months, so please stay tuned.  


I’m excited to see what we can accomplish together in the second half of the year and hope you have a wonderful summer.  

 

Yours in health,

Signature of Leena Patel

Leena Patel, Vice President of Development Add me on LinkedIn!

A note from Mira

In our work to make healthcare even more accessible, I am pleased to welcome PAN’s newest Manager of Development, Lindsey deMaintenon. Lindsey joins us from the Infectious Diseases Society of America Foundation, where she played a vital role driving the growth of their Industry Partnership Program. She has more than a decade of fundraising experience, which will help us as we aim to serve even more people in need. Lindsey will be working with me in our donor relations efforts, so you may start to hear from her soon—if you haven’t already! 


Mira Kruger, Manager of Development 

Add me on LinkedIn!

Headshot of Mira Kruger

PAN news

  • We’ve expanded our disease fund portfolio by opening a new fund last month for people living with Rett syndrome. A rare, genetic neurological disorder, it causes a loss of motor and spoken language skills, as well as other physical and neurological impairments in early life. See our list of prospective disease funds you could help launch on our website.  



  • PAN has been on the move visiting all the major conferences. We’ve enjoyed connecting with you and hope to see you at future events. Coming up in July and August we will be at the National Association of Hispanic Nurses Annual Conference, the National Medical Association’s Annual Convent & Scientific Assembly, and the National Black Nurses Association Annual Institute and Conference.  



  • We updated our position on alternative funding programs (AFPs) by expanding our position around banning co-pay accumulators and maximizers to also include AFPs, which hurt people in need of specialty medicines.  

PAN stories

  • Les Polonsky was diagnosed with multiple sclerosis in 2006. At the time, he struggled with a symptom called “dropped foot,” in which his foot would “drop” or drag before he could lift it high enough to make a full step. There was a “miracle medication,” but it wasn’t cheap. Thankfully, PAN was there to help. 


  • Arlene Burman would only leave the house if she could map out all the available bathrooms for more than a year following her Crohn’s disease diagnosis. Fortunately, her doctor found an effective combination of medications that worked for her, and she could finally leave her house with confidence. But when she changed health insurance plans, her co-pay went from $75 for a three-month supply to five times that amount, $375. That’s when she turned to PAN. 


  • Lara Evans tries not to let her rheumatoid arthritis define her life. Her income is about $1,000 a month, so there isn’t much left after rent. PAN helped her with her medication co-pays and transportation to get to her doctor and pharmacy. Because her pharmacy is in her supermarket, she can pick up her prescriptions and groceries during the same trip. 
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