April 2018 NEWSLETTER & CALENDAR

For​um: Saturday, April 14th, 10:30am-12:30pm ​
We added extra time. Stay longer for tea, coffee & conversation.
Forum: Dr. Anthony Santiago


The Road Most Traveled: The Gut-Brain Connection in Parkinson’s Disease​


Dr. Anthony Santiago is the newly appointed Chief Medical Officer at Parkinson’s Institute and Clinical Center, Sunnyvale, CA. He is an expert in neurodegenerative disorders and most recently served as the Chief Medical Officer and a member of the Board of Directors, for Pathways Group, Inc. 

Before joining Pathways Group, Inc., Dr. Santiago was Associate Professor and Vice-Chair of the Department of Neurology at the University of Minnesota School of Medicine. Prior to teaching at Minnesota, he was Associate Professor of Neurology and National Parkinson Foundation Center Director at the Muhammad Ali Parkinson Center of the Barrow Neurological Institute.

Dr. Santiago is a graduate of the Albany Medical College in Albany, NY, where he completed his post‐graduate training in neurology, a Fellowship in Movement Disorders/Neuromodulation, and was an Assistant Professor in the Neurology Department.


Saturday, April 14th, 10:30am-12:30pm. We added extra time.
S​tay ​longer for tea​, coffee​, & conversation​.

Location: Berkeley Unitarian Fellowship Hall
1924 Cedar Street at Bonita, Berkeley

To reserve a seat please email pdaforum@pdactive.org
In The News
Parkinson’s Peer Connect Mentoring Project Goes Live!
PD Peer Connect, a pilot mentoring project sponsored by PD Active, launched on March 10th with the formation of a dozen peer mentoring pairs. Thirty people convened in the North Berkeley Public Library Community Room for a primer on Parkinson’s Disease by movement specialist John Argue, and then there was an opportunity for people recently diagnosed with PD to be matched with someone who has had experience with the disease. 

Each of the pairs (of mentors and “newcomers”) formed at the gathering will connect three times over the next two to three months under the auspices of Peer Mentoring Team. They will then provide feedback to help improve the program going forward. The purpose is to provide empathy, emotional support, and information on resources for people new to PD on a personalized but short-term basis. 

If you are recently diagnosed and would like to have a peer mentor, or if you have had PD for some time and would like to help newcomers through a challenging time, please contact PD Active (mentoring@pdactive.org or 510- 479-6119) to request a signup form for the mentoring program. We will form new pairs once we have enough volunteers to make good matches.  

John Argue and Karen Garrison, the peer mentoring program team, will form new pairs once ​they have enough volunteers to make good matches.  
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Parkinson's Foundation "Moving Day ® " - Sunday, May 6th
Justin Herman Plaza at the Embarcadero, San Francisco
The walk starts at 10:30am
Registration begins at 9:00am and events end at 12:30pm

Join PD Active's Team and our captain, Ernie Scosseria

Visit PD Active's booth or, even better, take a short shift at the booth when you can talk to people about PD Active. It is fun to be behind the table.

Meet at PD Active's Booth before the march starts and walk with the PD Active Team.
  • You can walk for 1 mile, or 2 or 3 around the Embarcadero
  • You can participate in or watch movement exercises like dance, yoga, pilates, Tai Chi, RockSteady Boxing and more
  • You can talk with the other exhibitors and service providers
  • Ernie needs our help. If you can give 20 minutes of your time email: administrator@pdactive.org

Join the PD Dance performance​  

Y​ou are invited to dance on stage or watch from the audience. ​
​To ​practice your moves to Jackie Wilson's R&B song "Baby Workout" (1963), watch this video prepared by Debbie Sternbach:​  

To register and join the PD Active Team 2018 go to:
If you have difficulty, contact Gena Lennon, the Parkinson's Foundation Coordinator, at 415-963-0304 or email her at glennon@parkinson.org
Newsworthy
PD Active Welcomes Mike Gabel to the Board of Directors
Mike Gabel is founder and former owner of the leading building energy consulting firm, Gabel Energy LLC, located in Castro Valley, California. He served on the Board of Directors and was twice State Chair of the California Association of Building Energy Consultants (CABEC), a non-profit professional group. He also served for five years as President of his Villa Mira Vista Homeowners’ Association in Richmond, California. Mike was diagnosed with Parkinson’s in 2013 and believes strongly in the positive mission of PD Active.

PD Active is honored to welcome Mike to the Board. He will bring us technical and aesthetic expertise as well as music on his guitar.
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Lee Shapiro Joined John Argue To Lecture At UC Berkeley
For the second year in a row John Argue, one of PD Active's Board Members, was invited to talk to a class of 16 students who have been admitted to the UC Berkeley-UCSF Joint Medical Program. ​T​his elite group of students, after attending UC Berkeley for three years, will write a master's thesis. After graduating with ​a master's degree, the students will join the medical students at UCSF ​to ​complete their last two years of medical school​ to become MDs.​

Jennifer Breckler is responsible for arranging a weekly enrichment speaker's series to assist the students in their case-based curriculum. In late January the students were learning about Parkinson's Disease, and Jennifer invited John Argue to ​talk about his "Dancing with Parkinson's" movement program.

John asked Lee Shapiro, a loyal PD Active member, former student ​in John's class and a man devoted to movement and exercise, to join him​ at UC.​ John talked about the importance of exercise in the treatment of PD and about the work that PD Active does to ease ​the burdens borne by people with PD and their families. We have been told that Lee charmed the students with his wit and cheerfulness as he outlined his long experience with PD.

Lee's talk to the students titled "How Parkinson's Has Affected My Life" ​c​an be read here.

For more information about UC Berkeley-UCSF Joint Medical Program (JMP) , click here .
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Howard Martin Confronts his DBS...and He Wins​
In late February one of our long -time members, Howard Martin, started attending Kaitie Warren's "Be Heard" class at the JCC in Berkeley.  He had enjoyed the first class and came back the next week when John Argue substituted for Kaitie. 

Howard was feeling so invigorated that he thought he could walk and adjust his DBS at the same time. Therein lies a story that Howard wants to share. Please see Howard's email letter to Kaitie, read here.
In The News
Rock Steady Boxing ® Albany Expands the Class Schedule






One year ago PD Active helped Rock Steady Boxing ® (RSB) Albany establish its first classes in the Oakland-Berkeley area. Until that time, anyone with PD in the East Bay who wanted to participate in the RSB program had to travel to San Francisco.  PD Active heard the call of our members who wanted their own local classes.

In March 2017 , with the RSB Coach Daniel Burkhardt , classes started at the MMA gym at 544 Cleveland Ave, Albany.  Attendance has continued to grow over the year and starting April 1st more classes will be offered.

Monday: 12:00pm-1:30pm 
Tuesday: 9:30am-11:00am
Wednesday: 12:00pm-1:30pm 
Thursday: No Class 
Friday: 9:30am-11:00am 
Saturday: 1st and 3rd Saturday of the month​: 9:00am-10:30am 
How To Donate
PD Active is a 501(c)(3) organization. Contributions are tax deductible.

We rely on you, our generous PD Active members, and your friends and families, for our core financial support. It's easier than ever to help.
  • To donate by credit card: please click here
  • To donate by postal mail:  PD Active, P.O. Box 9246, Berkeley, CA 94709
  • To donate by PayPal: please click here
  • For other types of donations such as:
    Recurring credit card donations
    Stock or Donor Advised Funds
    Planned Giving - Property or other assets through your will 
    or estate plan
    Automobile

Contact Judith at  development@pdactive.org   or call   510-479-6119
 
Calendar for April 2018

PD Active Activities, Descriptions & Locations

 
Local Classes for People with PD

 www.pdactive.org| 510-479-6119 info@pdactive.org
PD Active P.O. Box 9246 Berkeley, CA 94709