By & for those affected by Parkinson’s disease
August 2023
From the Board
Speak Up and Speak Out
When we say PD Active is "by and for" those affected by PD, we mean that your ideas and suggestions help inform all that we offer. More than 200 members spoke up by completing the Annual Survey and affirmed that the most valuable topics for educational forums include up-to-date and groundbreaking research about Parkinson’s disease, medications and appliances. Information about exercise and nutrition rank high as well. Many members want a return to in-person classes and programs while acknowledging the need to maintain our online offerings. The Board is focused on finding locations that are affordable and accessible in order to address our community’s desire for more in-person events and classes.  

We count on your suggestions and donations when we consider new directions and programs for PD Active and we thank you for your valuable contributions.
Programs and Events
Tech Tips! Getting the Most Out of Your Phone or Tablet
In-person support on Wednesday August 2  
Stop by and get help maximizing your technology

PD Active family member Natalie Does will answer questions, review accessibility functions, assist in setting up medical ID, and provide useful tips like how to set reminders, use shared calendars, and store/tag/find photos. (Most helpful for Apple iPhone users, limited support for Android phones.) 

Date: Wednesday, August 2
Time: 10:30am – 12:00pm 
Location: Ada’s Cafe, 3075 Adeline, Berkeley (Ed Roberts campus)
At Ashby BART, Ample street parking
Do your typing keys go rogue now and then? Does your zoom screen sometimes disappear? I learned to fix these problems and more from the delightful Natalie, at PD Active's Tech Tips. Highly recommended.
—Karen Garrison
August Virtual Speaker Forum
Parkinson’s and the Gut MicroBiome — Part 1

Speaker: Dr. Bianca Palushaj, of Stanford Medicine, Division of Movement Disorders
Date: Tuesday, August 8
Time: 5:30pm – 7:00pm
On Zoom

The Gut Microbiome is the community of bugs that live inside the digestive tract. Studies show that the Gut Microbiome in people with PD is different from that in people without PD. Studies also suggest that these differences may contribute to inflammation, constipation, and PD symptoms. Join us to learn about this fascinating topic as well as learn about an opportunity to participate in an exciting Stanford research study led by Dr. Palushaj. 

Register here.
More information here.
PD Active depends on donations to bring programs like these to our members. We remain grateful for your contributions.
Save the Date
Parkinson’s and the Gut MicroBiome — Part 2
Clinical Trial Participation
Researchers will be on hand to answer questions and collect samples. Participation is by appointment only. Enrollment and consent will be done prior to the event. 
Learn more about participating in this fascinating study here.

Date: September 9 
Time and Location: By appointment
September Speaker Forum
Wearables and DBS: Getting Your PD Data Directly to your Doctor
Now your Apple Watch and/or your DBS system can track your PD symptoms, together with your exercise information and your medication regimen, and send all of that data directly to your doctor. Find out how!

Date: Saturday, September 30
Time: 10:30am – 12:30pm
PD Active Annual Fall Gathering in the Park
See old friends, and meet new ones at PD Active’s Fall Gathering 

Date: Sunday, October 15
Time: 1:00pm – 3:00pm
Location: Live Oak Park, 1275 Walnut St., Berkeley
Community Updates
UCSF Parkinson's Disease Symposium 2023
Learn more about scientific advancements and treatments for Parkinson’s disease, with presentations on a wide range of topics and several question-and-answer sessions.  

Date: Saturday, September 23
Time: 9:00am – 4:00pm
Location: UCSF Mission Bay Campus, 1675 Owens Street, 2nd Floor, Robertson Room, San Francisco, CA 94158.

Registration required. Sign up now. Space limited.

PD Active will have a table and we need volunteers. Contact Cathy Ball if you can help. 
Stanford Parkinson’s Research In Neuromodulation for Gait

Do you have a Medtronic Percept DBS System? 
The Human Motor Control and Neuromodulation Lab at Stanford University is seeking
participants for the SPRING Study which aims to investigate the safety and feasibility of adaptive deep brain stimulation (aDBS) for impaired gait and freezing of gait in Parkinson’s disease. 

For more information, contact or at (650) 723-6709.
Dance for PD® Fundraising Dance
Berkeley Ballet Theater's Dance for PD® Program will hold their annual fundraising dance on Saturday, August 5, 5:30pm – 8:00pm. Live music by the Idol Hands band, food and drink, and the world premiere of rewilding, a short film starring class participants, directed and choreographed by Robin Dekkers.

Tickets here.
Parkinson's Aqua Therapy Class
In Marin

When: Wednesdays, August 2 to September 6, 2:00pm – 3:00 pm
Location: 200 North San Pedro Road, San Rafael

Participants will jog, dance, box, play tennis, and golf in the water to increase strength and endurance and improve stiffness.  
Cost $255. Taught by Jocelyn Freid. 
Sign up and download a Physician consent form here.

Questions: Contact Elissa Coleman at 415-444-0834 or
Thank You to our Recent Donors
Grant Bennett
George Collier
Melinda Erickson
Rico and Maya Green
Barbara Hall
Pamela Hill
Ron and Carol Hofmann
Maureen Honegger

Suzan Kaplan
Jodi Kerfoot
Mitch Landy
Marilyn & Tom Morrish
Maria Servin
Beyant Singh
Chris and Annalisa Tay
Elaine Wolfe-Blank
Donations in Honor Of
Kerri and Mark Lubin – in honor of Judi Ettlinger
Elise Prowse – in honor of Risë Justman
Donations in Memory Of
Daniel Jarmel – in memory of Lee Shapiro
Judith and Stanley Lubman – in memory of Aubrey LaBrie
Barbaretta Morris – in memory of Aubrey LaBrie
Roxanne Phillips-Bradley – in memory of Aubrey LaBrie
Suzanne & Italo Calpestri – in memory of Aubrey LaBrie
Judith and Stanley Lubman – in memory of George Turner, former PD Active Board Member
New Monthly Donors
Helen Davis
Christopher Flores
Janet and Robert Kohne