July 2018 NEWSLETTER & CALENDAR
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Upcoming Forum - Next Generation Deep Brain Stimulation
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Our next Forum speaker, Coralie de Hemptinne, will be presenting on the clinical trials being conducted by the Starr Lab at UCSF.
Deep brain stimulation (DBS) is a common treatment for movement disorders that consists in delivering continuous electrical stimulation in deep brain structures. The goal of UCSF's trials is to improve DBS therapy by developing smart DBS paradigms able to automatically adjust stimulation parameters based on the patient’s symptoms.
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When: Sat., September 8th, 10:30 a.m. - 12:30 p.m.
1606 Bonita Ave, Berkeley, CA 94709
Who: Members, care partners, family, friends
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PD Active Annual Picnic on September 23, 2018
Forum with Dr. Rima S. Ash on November 10, 2018
Dessert Party and Mini-Info Fair on January 12, 2019
Forum with Author John Vine on February 9, 2019
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Report: 2018 PD Active Town Hall
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This year’s Town Hall took place on Saturday, June 9th and there were 65 participants. After a report from Board President Mary Pat Boersma and brief remarks by Executive Director Areca Smit and Board Member Judith Lubman, all the attendees, seven tables in total, engaged in discussions on topics ranging from improving outreach to serving those with Parkinson’s Disease (PD) who are still working.
The event brought to the surface so many ideas and we are grateful for all of the participation and thoughtful input. Areca has written a
report detailing what she took away from the event.
Click here to read the full report.
Whether you attended this year’s Town Hall or not, please know that all ideas and feedback are always welcome. If you have something you’d like to share, contact Areca at
asmit@pdactive.org or (510) 479-6119.
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Join the Team: Tour de Fox Wine Country, August 25th
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Board Member Chad Zucker has formed PD Active's first ever Tour de Fox team for the upcoming ride in
Santa Rosa. Riders of any experience level and finish line party-goers are all welcome.
If you're interested in joining PD Active's team, contact Chad at
yopd@pdactive.org and check out the team's web page
here.
When: August 25, 2018
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YOPD Group: Upcoming Meet-up
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Come share, laugh and learn in the outdoors with PD Active’s Young Onset PD group.
When: Sunday, July 15, 2018 9:00 – 11:00 a.m.
Meet at the Sibley Volcanic Regional Preserve trail head on Skyline Blvd. We’ll chat and share and commiserate for a bit, and then all who want can hit the trails. Dogs are welcome, too.
E-mail Chad Zucker at
yopd@pdactive.org
if you plan to attend or if you are not yet on the YOPD e-mail list and were diagnosed with PD in your early fifties or younger and wish to stay informed of the group’s activities.
*Photo Caption: Chad Zucker, Michelle Cheeseman, Lee Tollefsrud,
Jodeane Pringle
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UCSF's 2018 Caregiver Program - 2nd Presentation
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As part of the UCSF Parkinson's Disease Clinic and Research Center (PDCRC) grant from the Parkinson's Foundation, Aaron Daley, the coordinator of the program made a second presentation in the series to a special session of PD Active's Care Partners Support Group.
The title of the presentation was "Dealing with an Uncertain Future: Predicting and Preparing for Parkinson's Disease". He started by saying what we all have heard many times -- no one can predict the progression. Mr. Daley's slides are not yet available but if you wish to receive the e-slides if they become available, e-mail
info@pdactive.org.
There will be several other presentations in the months ahead. E-mail Joyce Sakai at
jk_sakai@yahoo.com to join the Care Partners Support Group.
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Still time - Order a PD Active t-shirt today
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Thought you missed your chance to sport a PD Active t-shirt? Nope, you can still order until July 15th.
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Janet Falk in honor of Ann Van Steenberg
Bruce Bernhard & Judi Sui
Henry Brady & Patricia Kates
GE Foundation (matching a donation by Greg Wajnowski)
Martin Kershaw
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Donations made at Anna Rabkin's June Reading
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Gene Arnold
Penny Barron
Joyce Bird
Garth & Shireen Burns
Carol Fisher
Robin Flagg
Spring Friedlander
Marianne Graham
Gayle Green
Ann-Marie Hogan
JudithAnne Justice
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Rachel Kahn-Hut
Lee Marrs
Lucille Poskanzer
Linda Schacht
Nancy Schimmel
Areca Smit
Mary Stapleton
Nik & Sally Warren
Karen Weinstein
E. Jane White
Jenny Li Wong
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Many thanks to Anna Rabkin for hosting a second reading of her
memoir and directing the proceeds to PD Active a second time as well. We are very appreciative for the support.
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PD Active is a 501(c)(3) organization. Contributions are tax deductible.
We rely on you, our generous PD Active members, and your friends and family members, for our core financial support. It's easier than ever to help:
- To donate by credit card
- To donate by postal mail: PD Active, P.O. Box 9246, Berkeley, CA 94709
- To donate by PayPal
- Recurring credit card donations
- Stock or Donor Advised Funds
- Planned Giving - Property or other assets through your will or estate plan
- Automobile
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Calendar for July 2018
The calendar includes classes initiated with financial support from PD Active.
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PD Active Activities, Descriptions & Locations
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Local Classes for People with PD
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www.pdactive.org - (510) 479-6119 - info@pdactive.org
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