By & for those affected by Parkinson’s disease
July 2023
From The Board
PD Active is in Full Swing This Summer
 
PD Active is maintaining a full schedule of exercise classes, activities (pickleball, hiking) and support groups throughout the summer. It is a great time of year to try something new and stay active and engaged. We hope to see you in-person or on Zoom. Happy Summer to all.

We want to hear from you!

If you have not completed this year’s PD Active survey, please fill it out and tell us what you think.

The survey only takes about 10 minutes — please fill it out today!
Save the Date
July Virtual Ask the Experts Round Table
Building Your Parkinson's Care Team

Featuring: Kathe and Dan Friel and Kerrie and Mark Halmi
Date: Tuesday, July 11, 2023
Time: 5:30pm – 7:00pm
 
Our community panelists will share with us their experiences — both the good and the challenging — along their journey to build a Parkinson’s care team. They will cover Kaiser as well as non-Kaiser experiences. Not sure who should be on your “team”? Who should be your team’s “quarterback”? What questions should you be asking your GP about all of this? Find out here.

More information and registration here.
You should receive a confirmation e-mail after registering. Contact us at info@pdactive.org or (510) 479-6119 if you need assistance.
Kathe Friel
Kerrie Halmi
PD Active depends on donations to bring programs like this to our members. We remain grateful for your contributions.
Tech Tips is Back! Getting the Most Out of Your Phone or Tablet
In-person support on Wednesday, August 2 
Stop by and get help maximizing your technology

PD Active family member Natalie Does will answer questions, review accessibility functions, assist in setting up medical ID, and provide useful tips like how to set reminders, use shared calendars, and store/tag/find photos. (Most helpful for Apple iPhone users, limited support for Android phones.)

Date: Wednesday, August 2
Time: 10:30am – 12:00pm
Location: Ada’s Cafe, 3075 Adeline, Berkeley (Ed Roberts campus)
At Ashby BART, ample street parking
"Do your typing keys go rogue now and then? Does your zoom screen sometimes disappear? I learned to fix these problems and more from the delightful Natalie, at PD Active's Tech Tips. Highly recommended."
—Karen Garrison
UPCOMING EVENTS
August Virtual Speaker Forum: Parkinson’s and the Gut MicroBiome — Part 1
Featuring: Dr. Bianca Palushaj, of Stanford Medicine, Division of Movement Disorders
Date: Tuesday, August 8
Time: 5:30pm – 7:00pm
Register here.
Classes & Programs
Neuro-Movement for PD

Teacher: Stephanie Comella
Time: 10:00am on Zoom every Thursday 

Each month, Stephanie’s NeuroMovement class for PD focuses on one area of neuro training. In July, the classes will focus specifically on developing strength using light weights or soup cans and body-weight exercises.
 
Stephanie’s program is inspired by the work she did (and continues to do!) with her father, who was diagnosed with Parkinson’s Disease in 2007 and re-diagnosed with MSA/Parkinson like symptoms in 2015.
"The Neuro Movement training introduces many exercises that work directly on muscle flexibility. Steph is very knowledgeable about the needs of PD patients and brains. Her lessons are fun, dynamic and challenging.  I feel that I really benefit from this class."
—Ilana Novak
Join Stephanie in a 55-minute neurological movement journey on Thursdays at 10:00am.
For more information, visit our website.

Registration: Classes via Zoom. Register for class here.

Check out the PD Active Monthly Calendar for listings of upcoming live-stream movement classes such as Tai Chi, boxing, yoga, dance and voice. 

For more information, contact programdirector@pdactive.org.
Community Updates
TOPAZ Research Study

Did you know? 1 in 10 Parkinson’s patients will have a fracture this year. If you've had a fall, your risk of fracture may be even higher.

The TOPAZ study will test if a medicine can prevent fractures and decrease risk of dying in people with Parkinson’s Disease. Learn more at TOPAZstudy.org

Email TOPAZ@ucsf.edu, or call 415-317-5748.

If you qualify, you can participate in TOPAZ from the comfort of your home, as it is a completely remote study. And you could receive $100 upon enrollment and $50 per year during the study.
Thank You to our Recent Donors
Donors
Grant Bennett
Daniel Burkhardt
Jeff Greenwald
Julie Merrill
Janelle Reinelt and Gerald Hewitt
Ronald Rioux and Marianne Glaspey
Diane Russell
Mike Gabel and Amy Scheinbaum

Laura Schlichtmann
Maria Servin
Beyant Singh
Susan Stein-Black and John Black
Chris and Annalisa Tay
Joanna Uribe
Carolyn Yale
Network for Good VIA Facebook
Donations in Memory Of
Judi Ettlinger and Carl Gardeman – in memory of Aubrey LaBrie
Daniel Jarmel – in memory of Lee Shapiro
Caitlin Powell – in memory of Bob Craggs
Marge Turngrenin memory of Emerson Mitchell
New Monthly Donor
Thomas Singman