June 2018 NEWSLETTER & CALENDAR
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Town Hall, June 9th - Come, Share, Listen
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The Annual Town Hall is taking place on Saturday, June 9th. The gathering will provide an opportunity for the entire PD Active community to come together to socialize, share ideas/feedback and help us understand how well PD Active is serving you. Refreshments will be provided.
Do you have ideas, questions and/or topics you would like to have covered? If so, please email us at
info@pdactive.org by June 8th. We will work to discern themes and integrate your input into the agenda.
We also still need table scribes to take notes at each table. If you’re interested, please e-mail Executive Director Areca Smit at
asmit@pdactive.org.
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When: Sat., June 9th, 10:30 a.m. - 12:30 p.m.
1606 Bonita Ave, Berkeley, CA 94709
Who: Members, care partners, family, friends
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Forum with Researcher Coralie de Hemptinne on September 8, 2018
PD Active Annual Picnic on September 23, 2018
Forum with Dr. Rima S. Ash on November 10, 2018
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Welcome to New Board Member, Chad Zucker
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We are honored to welcome Chad Zucker to the PD Active Board of Directors. Chad is founder and CEO of The Ziba Group, an IT consulting firm. For 10 years prior to forming the Ziba Group he worked in finance and technology. Chad also has broad experience in community service from running fundraising events to volunteering in community programs to personally giving financial support to many non-profits. An Oakland resident, he has four children, five dogs, and a loving wife, and has lived in the Bay Area for 28 years. Chad was diagnosed with Parkinson’s a year and a half ago at 52 and remains as active as possible. He recently started PD Active’s Young Onset PD group (
yopd@pdactive.org) which meets 1-2 times per month.
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Report: The Michael J. Fox Foundation Parkinson’s Policy Forum
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This past March, 300 Parkinson's disease advocates from nearly all 50 states convened in Washington, D.C. for the 2018 Parkinson's Policy Forum. This annual event brings people with PD and their loved ones to our nation's capital for two days of education and training followed by a day of advocacy, action, and engagement.
This year's Forum was co-sponsored by the Parkinson's Foundation and the Michael J. Fox Foundation. Nine other PD organizations also contributed time and resources to help make the event possible.
PD Active community members Nancy Husari from Alameda and Brooke Deputy from Oakland were in attendance. They are bringing what they learned at the PD Forum to our local PD community. In addition, they are interested in forming a group to schedule face-to-face meetings at our Senators’ and Representatives’ local offices, and to brainstorm other ways to advocate for Parkinson’s funding.
Read more
about their experience at this year’s Forum on our blog and learn about the Forum’s three specific asks to lawmakers.
*Photo caption: Senator Cory Booker (left), Brooke Deputy (center), Nancy Husari (right)
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The New Young Onset PD (YOPD) Group and Upcoming Meet-up
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Come share, laugh and learn in the outdoors with PD Active’s new YOPD group. The next meet-up will be a hike in beautiful Joaquin Miller Park. The group will chat, share and commiserate for a while around a table. Then, all who are interested will hit the trails.
When: Fri Jun 1, 2018 10:30 a.m. – 12:30 p.m.
Meet at the picnic tables near the parking entrance. The tables are next to the large slice of a redwood tree. E-mail Chad Zucker at
yopd@pdactive.org
if you plan to attend so he knows who to expect.
Also, e-mail Chad if you cannot make this event, are not yet on the YOPD email list and were diagnosed with PD in your early fifties or younger and wish to stay informed on the group’s activities.
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UCSF's 2018 Caregiver Program Series
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The UCSF Parkinson's Disease Clinic and Research Center (PDCRC) has received a 2018 Parkinson's Foundation Community Grant to develop a series of 60 minute programs for caregivers of people with PD.
Aaron Daley, MA, is the clinical coordinator for the program. He has started to visit caregiver groups for PD in order to lead discussions and explore how this pilot program can be developed for wider distribution.
PDCRC have begun programs on the following topics:
- PD Progression and Uncertainties
- Hospitalization
- Medicare and Medicaid Issues
- Changes in Relationships and Intimacy
- Management of Cognitive Decline of a PD Patient
Other topics will follow, such as finding quality homecare and healthy practices for caregivers.
Mr. Daley came to a specially scheduled meeting of PD Active's Care Partners Support Group to lead a discussion on Management of Cognitive Decline. The conversation was animated and could easily have lasted longer than the 90 minutes scheduled. PDCRC hopes to ultimately make their slides available to organizations such as PD Active after the programs are refined. PD Active will keep all our members advised once the series is available.
To be put on the list when materials are available please e-mail Judith Lubman, the coordinating PD Active board member, at
development@pdactive.org.
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Order your PD Active T-shirt
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Have you been wanting a PD Active t-shirt to sport at class? Yes? Here’s your chance. Choose a style and size and then pay on this fast and easy
online order form
. You can also purchase at Town Hall where we can help you place your order.
You will be notified when your shirt is ready in late June. The order deadline is June 15th.
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Bill Barclay
Gretchen Greene
Paul Groth
Joanna Kao
Jane Levy
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Kevin Parichan
Seyem Petrites
Nancy Rothschild
Evie Wozniak in memory of Marty Rabkin
Chad Zucker
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Donations made at Anna Rabkin's Reading
Joan Bieder
Mary Ann Brownstein & Kerry Woodward
Ann-Marie Hogan
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PD Active is a 501(c)(3) organization. Contributions are tax deductible.
We rely on you, our generous PD Active members, and your friends and family members, for our core financial support. It's easier than ever to help:
- To donate by credit card
- To donate by postal mail: PD Active, P.O. Box 9246, Berkeley, CA 94709
- To donate by PayPal
- Recurring credit card donations
- Stock or Donor Advised Funds
- Planned Giving - Property or other assets through your will or estate plan
- Automobile
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Calendar for June 2018
The calendar includes classes initiated with financial support from PD Active.
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PD Active Activities, Descriptions & Locations
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Local Classes for People with PD
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www.pdactive.org - (510) 479-6119 - info@pdactive.org
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