October 2018 NEWSLETTER
Navigating Parkinson’s Disease: Current and Future Treatments
Dr. Rima S. Ash is a Movement Disorder specialist at Kaiser Permanente San Francisco. Having completed a fellowship in movement disorders such as Parkinson’s disease, essential tremor, and dystonia, Dr. Ash has had extensive training in using deep brain stimulation and Botulinum toxin. At Kaiser, she works with a multidisciplinary team of specialists that focus on the surgical treatment of movement disorders. She chose this sub-specialty because of the complexity of diagnosis, and because of the enormous progress that has been made in the treatment of these disorders. Dr. Ash has a Board certification in Neurology with the American Board of Psychiatry and Neurology.  
Date : Saturday, November 10, 2018
Time : 10:30 a.m. - 12:30 p.m. ​
1606 Bonita Ave, Berkeley, CA 94709
*If you have trouble registering, please e-mail us at info@pdactive.org.
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Save the Dates
Dessert Party and Mini-Info Fair on January 12, 2019

Forum with Author of "A Parkinson's Primer", John Vine on February 9, 2019

Forum on the Gut and PD with Dr. Ethan Brown on April 13, 2019
In The News
September Forum Report
The Fall PD Active season kicked off on September 8th with a Forum devoted to Deep Brain Stimulation (DBS).

Coralie de Hemptinne, UCSF researcher, and Dr. Doris Wang, UCSF faculty member, presented a very informative session on the latest developments and clinical trials for DBS at UCSF as well as a detailed description of how DBS works.

PD Active community members remarked on and indicated appreciation for the clarity of the two presentations and for the lively question period.

Slides used during the talks have been made available. If you would like to 
obtain a copy please contact us at  info@pdactive.org.

*Photo: Coralie de Hemptinne
*Photo: Dr. Doris Wang
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Picnic Success!


Our thanks to everyone who came out for the annual PD Active picnic potluck. It was a lovely day to gather and we certainly enjoyed lots of good food and great company.

*Photo: Mike Gabel, Karen Garrison, David Edelson
*Photo: Stanley Lubman, Gordon Wozniak, Robb Lazarus
Community Updates
Tips for Carrying Emergency Information
Here is a handy guide for preparing emergency medical information. We urge all community members to prepare this information and keep it accessible and on your person at all times. Above all keep the name of the person to contact with your health care card. 

If you have an iPhone you should fill out the Health app that comes with the phone. This app can be used in emergency even if the phone is locked.

If you have an Android phone, here are instructions for adding emergency info to your lock screen.

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Become a Mentor - Orientation coming up
What: Have fun and hone your skills with John Argue (Art of Movement pioneer) and Karen Garrison as they lead a review of the mentor training guide and share resources that can help you be an effective mentor.
When:  Saturday, October 13, 10:30 to 11:30 a.m.
WhereNorth Berkeley Public Library, 1170 The Alameda (at Hopkins)

For more information contact mentoring@pdactive.org.
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Yoga Nidra Workshop for People Affected by PD
Yoga Nidra is a deep and healing relaxation which can be done either seated or reclining. Discover techniques to reduce your anxiety and stress levels and learn how to develop your own mindfulness to be more at ease with your thoughts and feelings without being overwhelmed by them. Everyone will receive a recording of Yoga Nidra for their personal use. The class will be taught by PWR! Moves ® and Chair Yoga Instructor Petra Fibrichova together with Kate Johnson.

When: October 27, 2018 from 10 a.m. to noon
Where: Bellevue Club, 525 Bellevue Avenue, Oakland, 94610
Fee: $30

RSVP by October 20th to Petra Fibrichova at Fibrichova@gmail.com. The workshop is open to people with Parkinson's and care partners.

*Photo: Petra Fibrichova and Kate Johnson
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New California Parkinson's Disease Registry
California Health and Safety Code now requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health as of July 1, 2018. The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) will be a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease. 

Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time. California's large and diverse population makes it ideal for providing important information about this disease. CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.

For more info see the CPDR website and the CPDR FAQs.
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Required IRA Distributions - Directed Tax-Free to PD Active
You no longer need to wait until the end of the year to distribute your required minimum distribution (RMD) from your IRA. A quick reminder that if you are over 70 you are eligible to use your RMD to make tax-free donations to qualified charitable organizations. PD Active is a 501(c)(3) and would be pleased to receive your IRA donations. No gift is too small, so please keep us in mind when evaluating your IRA.

Here are some helpful FAQs on the topic.
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Lauren Banister - PWR! Moves ® Training
Over the summer, Lauren Banister began working with Petra Fibrichova as the class assistant for both PWR! Moves ® and Chair Yoga. It wasn't long before the PD Active Board approved a scholarship for Lauren to be formally trained to teach PWR! Moves ®. Having another instructor will help bolster and grow PWR! Moves ® and over time help make this program available to more people. Lauren undertook the training in Arizona last month.

To learn more about Lauren Banister, please visit her website.
*Photo: Elena Balashova and Lauren Banister
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PD Passings
Allan Hansell - August 7, 1943 to August 22, 2018
Thank You, Donors
Walter Day & Lydia Shih
Louise Miller
How To Donate
PD Active is a 501(c)(3) organization. Contributions are tax deductible.

We rely on you, our generous PD Active members, and your friends and family members, for our core financial support. It's easier than ever to help:

  • To donate by credit card
  • To donate by postal mail: PD Active, P.O. Box 9246, Berkeley, CA 94709
  • To donate by PayPal

Contact Judith Lubman at  development@pdactive.org   or call (510) 479-6119 for other types of donations such as:
    
  • Recurring credit card donations
  • Stock or Donor Advised Funds
  • Planned Giving - Property or other assets through your will or estate plan
  • Automobile
 
Monthly Calendar

The calendar includes classes initiated with financial support from PD Active.

PD Active Activities, Descriptions & Locations

Local Classes for People with PD

 www.pdactive.org - (510) 479-6119 - info@pdactive.org