By & for those affected by Parkinson’s disease
September 2020
From The Board
Stepping Up to the Challenges and Opportunities
The PD Active Board kicked into overdrive with the onset of COVID-19. Over the past five months not only have we converted all existing classes, support groups and events to online sessions, we have also created new offerings including the Round Table, our most recent virtual format. The first Round Table launched on August 18 to a full audience of engaged participants. Feedback has been very positive. We are getting the message loud and clear that you want more and we’re inspired to deliver.

To provide our community with high quality classes, support groups and events, you have come to expect we count on your financial assistance especially during the ANNUAL APPEAL, our only fund drive of the year. Soon you will be receiving our mailing with a request for donations. Your contributions of any amount make all the difference.

Thank you in advance for your invaluable support.
Save the Date
Cannabis and the Treatment of Parkinson's:
Is Anything Known?

Date: Saturday, September 19, 2020
Time: 10:30 am - 12:30 pm

The medicinal, mind-altering, material, and nutritional qualities of Cannabis have resulted in human relationships with this plant dating back thousands of years. Its complex and unique
chemistry has fostered the development of important discoveries in neuroscience. What, if anything, is known about the potential therapeutic effects of Cannabis in the treatment of Parkinson’s.

David E. Presti teaches neurobiology and psychology at the University of California, Berkeley, where he has been on the faculty in molecular and cell biology for nearly 30 years. For more than a decade he worked in the clinical treatment of addiction and of post-traumatic-stress disorder at the Department of Veterans Affairs Medical Center in San Francisco.

PD Active depends on donations to bring programs like this to our members free of charge. We remain grateful for your contributions.
David E. Presti
You should receive a confirmation e-mail after registering. Contact us
(510) 479-6119 if you need assistance.

Forum with Dr. Jaimie Henderson, Stanford Professor of Neurosurgery and Neurology: 11/14/20 at 10:30 am


Annual Picnic: 10/11/2020 at 12:30 pm

An alternative event might be a possibility.

Classes & Programs
PD Active's August Round Table a Resounding Success!

On August 18, three PD Active members: Karen Garrison, Mike Gabel and Mike's wife/care partner Amy Scheinbaum, shared their experiences with DBS at our first virtual Round Table, DBS: What to Expect and How to Live With It. The panelists' presentation was followed by an engaging Q&A period with attendees. Several of our attendees had gone through DBS surgery themselves and acted as impromptu panelists sharing their experiences.

Stay tuned for more Round Tables coming soon.
Pilates and Mindfulness Meditation Classes
Thursdays at Noon and 1:00 pm

The newest additions to our ABC line-up are off to a great start. Join instructor Lila Heller for Pilates on Thursdays from noon - 12:50 pm and meditation at 1:00 pm.
Read more about these classes here.

PD Active’s ABC Program provides live stream classes from experienced instructors, including Tai-Chi for PD, PWR! (Parkinson’s Wellness Recovery), Pilates for PD and Mindfulness Meditation. Join us!
Rock Steady Boxing Albany Adds Saturday Class
10am - 11:30am

Rock Steady Boxing (RSB) Albany has added a virtual Saturday class taught by coach Kim. If you are already taking boxing classes no need to pre-register just log on for class.
If you are new to RSB, contact Coach Daniel at or call (925) 471-5432. Read more about Rock Steady Boxing Albany.
A Program for Voice and Song
Every 2nd, 3rd & 4th Wednesday
The Tremolos meet on Zoom three Wednesdays a month to sing with director Lauren Carley and accompanist, Carol Gilbert.
The joy of singing together develops community and the Tremolos support one another to believe “I can sing and I can move!" The Tremolos welcome you to join the camaraderie and community. Read more about The Tremolos.
Be Heard! Classes on Hiatus

The Tuesday and Friday Be Heard! Voice for Parkinson’s Class taught by KT Warren is temporarily on hiatus. We will keep you posted on when classes will resume.
For more information, contact
Community Update
California Parkinson's Disease Registry Virtual Conference
The California Parkinson's Disease Registry is hosting a free virtual conference on Saturday, September 26, 2020 from 10:00am - 12:00pm for the broader Parkinson's Disease Community. The California Parkinson Disease Registry conference team and guest speakers will share current information about the registry and what comes next.

Participation in the registry is likely to increase what we know about the condition, help health care professionals improve treatment, and allow researchers to design better studies on the condition including development and testing of new treatments. Additionally, this information could lead to increased funding for Parkinson's Disease Research.

Conference Questions: 916-357-6641 or
California Parkinson's Disease Registry information:
Email or call 916-731-2500, ext. 3
Parkinson Disease Educational Conference
The Parkinson Association of Northern California (PANC) is excited to announce that its 2020 Annual Virtual Conference is scheduled for October 24, 2020. The conference will feature a diverse group of experts, movement disorder specialists, neurologists, surgeons, neurophysical therapists and others who will provide information and education. The Keynote Speaker, Dr. Soania Mathur, is a dedicated Parkinson’s advocate, speaker, author, educator and 2019 recipient of the World Parkinson Congress Distinguished Contribution Award.
Registrants will have the opportunity to join in two movement breaks, visit the virtual exhibit hall, enter a drawing, ask the speakers questions and join others at small viewing parties. Registration is $10 per person and includes a gift of Dr. Mathur’s book: Shaky Hands. Registrants will receive a link to access the conference.

For more information and to register go to
Opportunity to Join Remote Research Study at UC San Francisco
Dr. Caroline Tanner, MD PhD is recruiting for a new, completely remote, home-based clinical trial led by a team of Parkinson’s experts at UCSF in partnership with researchers from across the country. The goal of the study is to help people with Parkinson’s disease reduce the risk of hip fractures.
TOPAZ (Trial of Parkinson’s and Zoledronic Acid) will test if zoledronic acid, an FDA-approved medication for osteoporosis (thinning of the bone) can prevent fractures in people with Parkinson’s disease. To be eligible, individuals must have Parkinson’s disease and be at least 65 years of age.

If you have any questions, please visit our study website or email, or call us directly at (415) 317-5748.
PD Active is on Facebook! 
We would love to connect with you so check out our Facebook page and share it with a friend. 

You can also become a member of the PD Active Community Group here. The Community Group is free and is intended to provide an online forum available to members only for lively, timely and thoughtful discussions.
Thank you to our Recent Donors
Kathe Friel
Erik and Priscilla Green
Lawrence Hayden and Valerie Mitchell
Mitch Landy
Lauren Livingston
Doreen Ludemann
Derek and Janice Ransley
Ronald Rioux and Marianne Glaspey
Evie and Gordon Wozniak

Car Donation:
Stanley and Judith Lubman