You're Invited: Connected-to-Care Regional Summits

We’re excited to share that PSC Partners is bringing a new, in-person event to your area.

Upcoming summits:

• PSC Partners Connected-to-Care Summit – Los Angeles | June 13
• PSC Partners Connected-to-Care Summit – Chicago | July 18
• PSC Partners Connected-to-Care Summit – New York | October 3

This one-day summit will bring together people living with PSC, caregivers, and clinicians for a meaningful day of connection and learning. You can expect patient-led discussions, expert insights, and opportunities to connect with others who understand the journey.

Interested in attending?

Take a moment to fill out our quick interest form so you’ll be the first to receive event details and registration information when it opens.

The summit is offered at a low cost of $10 as part of our commitment to making PSC education and support accessible.

Whether you’re newly diagnosed or have been navigating PSC for years, this event is designed to meet you where you are and help you feel more informed and supported.

One Week Away: Reserve Your Spot

We’re just days out from a powerful conversation you won’t want to miss.

Join us live for From Donation to Recovery: Real Stories Behind Liver Transplant, a moving webinar that brings you face-to-face with the courage, generosity, and resilience behind every transplant journey.

Moderated by Niall McKay, transplant recipient and host of the Living with PSC podcast, featuring:

• Brooke Babcock – Living Liver Donor
• Michelle Murphy – Transplant Recipient
• Yvette Matthews – Transplant Recipient
• John Crowley – Two-Time Liver Transplant Recipient

You’ll hear how a simple moment at the 2024 PSC Partners Conference led to a life-saving transplant and how that experience is now helping raise awareness for PSC and living donation.

You'll also get a glimpse into the upcoming Transplant Games of America, a powerful celebration of life and second chances.

Join Us!

➡️ Live Webinar: From Donation to Recovery: Real Stories Behind Liver Transplant

📅 April 28

⏰ 6 p.m. MT / 8 p.m. ET

🔗 Register at bit.ly/transplant-webinar

Whether you’re a patient, caregiver, donor, or advocate, this is your chance to connect with the stories and people behind transplantation.

A New Chapter for PSC Partners Canada

After more than a decade of leadership and dedication, Mary Vyas, President and Board Chair of PSC Partners Canada, along with Board Members Sandy VanOstrand and Richard Ayuen, have stepped down from their roles. Their work has helped build a strong Canadian PSC community, expand research efforts, and support patients and families across the country. We are deeply grateful for the time, care, and commitment they have given to this mission. Read the full announcement to learn more about their contributions and what’s ahead for PSC Partners Canada.

Take the Latest PSC Registry Survey

A new survey focusing on the impact of gallbladder removal on the course and outcomes of PSC is now available in the PSC Partners Patient Registry. All patients are eligible to complete the 10-15 minute survey. Even if you have NOT had your gallbladder removed, your response is needed to compare outcomes.

Log in to the Registry to take the survey today at pscpartnersregistry.org. This survey was developed by PSC Partners, PSC Support, and leading researchers in PSC.

When Rest is the Right Choice

Sandi Pearlman’s light lives on. We honor her with this excerpt from Sandi's Journey.

"On days when fatigue won't let you get out of bed, give in. Make a day of it. Every once in a bit, let the fatigue monster win, but on your terms. Cuddle up under a comforter and watch some bad TV. It's not fatigue's or your body's choice to lie in bed all day. It's yours. You're in control."

From Donation to Recovery: Real Stories Behind Liver Transplant

April 28

6 p.m. MT / 8 p.m. ET

Register Here

Whether you are a patient, caregiver, donor, or advocate, this PSC Partners webinar offers an opportunity to connect with the human side of transplantation and the community that makes these journeys possible.

#RAREis Scholarship Opportunity

Applications open until April 28 at 2 p.m. ET

Living with PSC? Have a dream to pursue higher education? PSC Partners encourages you to apply to the #RAREis Scholarship Fund. This year, the fund will be awarding $5,000 scholarships to 58 adults (17+) to pursue their educational and training goals.

Learn More

Zoom Room: Teens with PSC or Post-Transplant (Ages 13-19)

May 12

6:30 p.m. MT / 8:30 p.m. ET

This moderated Zoom Room offers a supportive, judgment-free space for teens to hang out, share experiences, and be with others who get it.

Register Today

Zoom Room: PSC and Post-Transplant, Spouses and Caregivers, and Parents of Children with PSC

May 14

6 p.m. MT / 8 p.m. ET

Experience the power of shared understanding in virtual PSC Zoom Rooms - a space to connect, find support, and know you're not alone.

Register Today

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Stay Connected with PSC Partners

Sign up to receive the information that matters most to you—from research and volunteer openings to our three e-newsletters:

• The Beacon - Scientific research quarterly newsletter
• The Duct - The latest monthly PSC news, updates and events
• The Viaduct - Patient Registry quarterly newsletter