May Newsletter
In this issue:
Pain community unites to respond to federal draft report on pain | U.S. Pain unveils new magazine, hosts storytelling workshop at RetreatMigraine | CDC, FDA respond to harm to pain patients | Congress introduces step therapy act, state efforts continue |  and more.
Pain community unites to respond to federal draft report
 
A coalition of 11 pain patient-related nonprofits, including U.S. Pain, submitted a joint letter with feedback on the federal draft report on pain management best practices.  Read more.
Embracing the power of storytelling

At the first-ever RetreatMigraine April 12-14, U.S. Pain unveiled its latest INvisible Project and held workshops on the power of sharing patient stories.   Read more.
Pain Connection adds four support groups and new monthly call

Finding community support is essential to living with chronic pain. With that in mind, Pain Connection, a program of U.S. Pain, continues to expand its support group offerings.  Read more.
CDC, FDA respond to harm to pain patients

The FDA and CDC have reacted to harm to people with chronic pain as a result of policy measures intended to ameliorate the opioid crisis Read more.
Congress introduces step therapy act, state efforts continue

Patient and provider groups are celebrating the introduction of the "Safe Step Act," which would limit step therapy or fail first.   Read more.
Pain Warrior of the Month:
Angelica "Heidi" Brehm
City & state: Albany, CA
Age: 45
Pain warrior role: U.S. Pain advocate since 2018
Health conditions: Chronic migraine disease, irritable bowel syndrome, and anxiety
What is your favorite tip for others with chronic pain: " Be proactive. Being proactive about my treatment has given me back a sense of control. It has been helpful for me to learn about my conditions and to find ways that my actions and thinking can influence their severity. Chronic pain is not something that I have been able to deal with on my own. I've had to reach out and get support from my family and friends, therapists, healthcare providers, and an understanding community of other people with chronic pain conditions. I've had to learn new skills, develop new relationships, and embrace healthy habits in order to live each day with as little pain and as much joy as possible."
What's a fun fact about you: " I love volunteering at my local children's hospital. I am so inspired by the patients I meet who face their health challenges with bravery, determination, and grace!"

Heidi Brehm is an active advocate for the U.S. Pain Foundation. She has worked diligently to raise awareness for chronic migraine disease by participating in the Headache on the Hill advocacy day in 2017, 2018, and 2019. Heidi deeply believes in the importance of education, distributing materials to other individuals living with migraine disease and taking part in U.S. Pain's educational events, such as webinars. You will often see Heidi at events dressed as the "Migraine Woman," which befits her personality as a joyful and fun-loving yet fierce warrior raising awareness for chronic migraine disease.

U.S. Pain in the News
For more U.S. Pain in the news, visit our news page.
Upcoming Events
  • May 1: Support group meeting in Tucson, AZ (Natural Healing Care Center) 
  • May 2: Afternoon Pain Connection Live conference call support group and a support group meeting in Pell City, AL
  • May 3-5: U.S. Pain booth at New York Metro Abilities Expo in Edison, NJ
  • May 4: U.S. Pain booth at Arthritis Foundation walk in Long Branch, NJ
  • May 7: Support group meeting in Tucson, AZ (Pascua Yaqui Tribe); held weekly on Tuesdays
  • May 8Support group meeting in Thousand Oaks, CA
  • May 9: Evening Pain Connection Live conference call support group and a support group meeting in Madison, WI
  • May 9-10: Pain Management Best Practices Inter-Agency Task Force public meeting in Washington, D.C.
  • May 10: Support group meetings in Arlington, MA, San Francisco, CA (new), and Oakhurst, NJ (new)
  • May 13: Support group meeting in Rockville, MD
  • May 14: Support group meeting in Detroit, MI
  • May 15: Support group meetings in Sacramento, CA (new) and Middletown, CT
  • May 16: Morning Pain Connection Live conference call support group (new)
  • May 19: Support group meetings in Costa Mesa, CA, (new) and Concord, NH
  • May 21: PEP Talk: "The role of genetics, polypharmacy, herbals, and supplements in pain medication efficacy"
  • May 24: Support group meeting in San Francisco, CA (new)
  • May 24-26: Pediatric Pain Warrior Retreat in San Antonio, TX
  • May 25: Saturday Pain Connection Live conference call support group
For full details about this month's events, including times and locations, 
visit our online calendar.
New Resources
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Do you have U.S. Pain-¬≠related news to share? Send news tips and any other comments to   newsletter@uspainfoundation.org. We welcome your feedback!
 
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