THE NATIONAL PANCREAS FOUNDATION WANTS TO HEAR FROM PANCREATITIS PATIENTS! MAKE YOUR VOICE HEARD!

The first ever Patient-Focused Drug Development Meeting on Pancreatitis was held on March 3, 2020. While the meeting was a great success, our work is not done. We are currently writing the Voice of the Patient report to provide to the FDA. We know that the majority of you could not attend in person. We want your voice to be heard. Please fill out this quick survey (6 questions) and share with us your symptoms and current treatment options. Surveys are 100% anonymous as we do not ask your name and are only focused on patients' answers and experiences with pancreatitis. To start the survey, please click the image below.
CURRENT PATIENT EDUCATION EVENTS & RESOURCES
Join the NPF and Ariel Precision Medicine on June 17th for the second webinar on Genetics and Pancreatitis.
Clinical genetic testing can provide insight into the underlying causes of disease and optimized treatment for patients. In this webinar, we discuss the trade-offs, and some of the terminology and content you may find in a clinical genetic report.

To register, please click on the image below.

  • Genetics and Pancreatitis Webinar with Ariel Precision Medicine | June 17, 2020
  • Senior Health Fair | Fort Wayne IN, September 17, 2020
  • Indiana Chapter Education Event | October 2020*
  • Michigan Chapter Education Event | Oct. 17th, 2020*

*Save the date! More details to follow.
Did you miss the the PFDD meeting or the first webinar on genetics with Ariel Precision Medicine? You can catch all the videos here on the NPF YouTube Channel. We continually update all our videos on NPF education events on pancreas disease. Never miss a video - subscribe today!
HEREDITARY PANCREATITIS - AIDEL'S STORY

"When becoming symptomatic at such a young age, there wasn’t really a before diagnosis'. It’s a new normal that children with chronic disease somehow find a way to adapt, the before and after kind of blend into one narrative and a reality that we adapted to. Unfortunately, the plethora of support, research, and support that children with illnesses have access too didn’t exist really when I was diagnosed. We hardly understood my own disease, how can we expect the school, community, and friends to understand and support."

NPF Downstate NY Chapter Chair, Aidel Rosenberg shares her story as well as her two siblings stories with hereditary pancreatitis. To read more, please go CLICK HERE.
ANIMATED PANCREATITIS PATIENT
The Animated Pancreas Patient is perfect for those that want to learn about pancreas disease or have been recently diagnosed and want to know about treatment options, nutrition, clinical trials, surgery, and more. Our most recent module is "Caring for the Caregiver." The videos easily guide viewers through various matters pertaining to pancreatitis (adult and pediatric) and pancreatic cancer in English and Spanish.
BUT WAIT! THERE'S MORE...
For more information on pancreatitis and pancreatic cancer, please visit our website: www.pancreasfoundation.org .

You will find further information on NPF Centers , Chapter information , the Pancreatitis Cookbook , and more!
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