HEREDITARY PANCREATITIS - AIDEL'S STORY
"When becoming symptomatic at such a young age, there wasn’t really a before diagnosis'. It’s a new normal that children with chronic disease somehow find a way to adapt, the before and after kind of blend into one narrative and a reality that we adapted to. Unfortunately, the plethora of support, research, and support that children with illnesses have access too didn’t exist really when I was diagnosed. We hardly understood my own disease, how can we expect the school, community, and friends to understand and support."
NPF Downstate NY Chapter Chair, Aidel Rosenberg shares her story as well as her two siblings stories with hereditary pancreatitis. To read more, please go