Please click on the link in the text below and help us to support this brand new Australia research project regarding: "Occupational performance patterns in children with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS)".

Michelle Newby is conducting the research as part of her Phd- Michelle is a fellow PANDAS/PANS parent and was recently a speaker at the SANE PANS conference in Sweden.


"Occupational Performance Patterns in Children with Paediatric Acute-onset Neuropsychiatric Syndrome (PANS)"

Parents and Carers Needed to Participate in Research Study!

Do you have a child aged between 5 and 12 years with a PANS/ PANDAS diagnosis and currently live in either Australia, UK, USA, Canada, Ireland or New Zealand? Researchers at the University of Newcastle, Australia, are researching the impact that PANS/ PANDAS flares has on a child’s participation in daily life activities.

*****If you are interested in finding out more or participating, please click on the following link

We encourage you to invite other families you know, who may also be interested in participating in the study, by sharing this post or the above link.

This project has been approved by the University of Newcastle, Human Research Ethics Committee, Approval No. H-2019-0284.

This research is being coordinated by Michelle Newby, PhD Candidate (; Shelly J Lane, PhD, OTR (; Kirsti Haracz, PhD (kirsti.haracz@newcastle.e; and Janice Tona, PhD, OTR (’

Dedicated to improving the diagnosis and treatment of children with PANDAS and PANS