Two New Centers of Excellence |
Pheo Para Alliance has designated St. Bartholomew’s Hospital in London and The Ohio State University – The James Comprehensive Cancer Center in Columbus, OH as Centers of Excellence. The Center of Excellence Program recognizes institutions worldwide for providing cutting-edge, quality, multi-disciplinary care and participating in pheo and para and related research. The announcement of these two additional centers, brings the total list of Clinical Centers and Centers of Excellence to six, with more announcements slated throughout 2021.
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In Memory of David A. Stevens |
David Aaron Stevens, the youngest child and only son of Mark and Ella Irene Stevens, was born on August 24, 1983, in Baltimore, MD. From childhood on, David was always a thinker; he was very focused and not easily distracted. When David put his mind to something, he was fearless. After graduating from Morgan State University where he earned a B.S. in Finance and an MBA, David moved to Northern Virginia where he met his wife Bethel. The two married in December 2014 and shortly after that David was diagnosed with a rare form of metastatic pheo which his doctors had not seen before and said was untreatable. |
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David was a loving husband, son, brother, uncle, friend and inspiration to so many. He was also a fierce protector of those dearest to him, a savvy negotiator, a “sports and gamer nerd” (his terminology), an entrepreneur, a mentor, a talented dancer and most of all an overcomer who fearlessly fought the pheo cancer diagnosis he received at just 32. However, David was determined not to adopt the illness as part of his identity and recognized that this was as much a mental battle as it was a physical one. Following the initial surgery, David went on to found his own business and also started writing a book. David was also a volunteer in the community where he mentored young elementary school kids.
Through the years that followed, grounded in his unwavering faith, David exhibited great strength and determination which served as an inspiration to all those who knew him. David fought metastatic pheo for over 5 years, enduring multiple surgeries to remove tumors in addition to a chronic digestive problem he dealt with over the last 3 years. Following complications from stomach surgery, David passed away on June 7th, 2021 surrounded by his family. After the heartbreaking news, David’s wife set up a memorial fund in David’s name and through the generous contributions of family and friends, a $5,000 donation was made to the Pheo Para Alliance. The funds will go towards research in the hope of getting one step closer to finding treatment options for those still fighting the disease.
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CME Activity: Metastatic Pheochromocytoma |
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Tune in to this free CME webisode provided by myCME.com, who is recognized as a global leader of continuing medical education (CME), which provides healthcare professionals with relevant, engaging, and actionable education that positively impacts clinical performance and patient outcomes.
This hour-long webisode covers:
- The pathophysiology and clinical manifestations of pheo para
- Evaluation of patients of suspected pheo para to make a definitive diagnosis
- Summarizes management options for malignant pheo para
Although, this was created for healthcare professionals, patients and caregivers can also tune in for free.
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Patient Feedback Requested |
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Have you been seen at one of the centers below in the past year for pheo para? Both have applied for a Center of Excellence designation from the Pheo Para Alliance. Take this short survey about your experience. |
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Research Rookies is an ongoing article series to help patients and caregivers understand the research that is being done to find answers to questions about pheo para. It’s written in easy-to-understand language focused on making us all better patient and caregiver advocates and providing much-needed hope to those affected.
Our 2nd article: Outsmarting our pheos and paras! Molecular Radioactive Trojan Horses are Being Used to Beat Pheochromocytoma and Paraganglioma
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INSTAGRAM LIVE
Friday, July 2nd at 8am ET
Cait will discuss Scanxiety
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NETRF NETWISE PODCAST
Topic: Pheo Para
PATIENT MEETUP
August 22, 2pm ET
Prussia, PA
More info soon!
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Pheo Para Alliance relies on the generosity of the pheo para community to fund its mission. To join our mission, donate below. |
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