April 22, 2020
Schedule for Today - Wednesday April 22
Focus on Hereditary Coproporphyria (HCP)
MAKE SURE YOU HEAD TO FACEBOOK AT 4:30 PST/6:30 CST/7:30 EST
Facebook Live with Porphyria Expert, Dr. Bruce Wang
, UCSF, will answer your questions during a Facebook Live event
Wednesday, April 22 at 7:30 PM - EST
. Please make sure that you are following the
APF FB Page
Please send us any questions that you would like answered by Dr. Wang. We will be accepting questions at:
until 4:30 PM EST.
HCP Member Spotlight - Sara Lee
Read About Sara's Porphyria Story
Hereditary Coproporphyria (HCP)
Hereditary Coproporphyria (HCP) is a rare metabolic disorder characterized by deficiency of the enzyme coproporphyrinogen oxidase (CPOX).
Click Here to Read More HCP Member Stories
SEND US YOUR PHOTOS AND STORIES FOR A
SATURDAY #PorphyriaAwarenessWeek ROUND-UP
Purple shirt? Purple Hair? Purple Nails? Furry friends?
An interesting conversation?
Send your pictures and/or stories to
Hurry - supplies are going fast!
Porphyria Awareness Week Merchandise for sale on the APF store.
APF STORE LINK
#AskMeAboutPorphyria encourages you to educate your local community and healthcare professionals through encouraging a conversation about Porphyria and the impact it has on you. One conversation can make a difference.
Have you had a good conversation about Porphyria? Share with us
Please Click Here to Access the APF Webpage for Awareness Week Logos and Materials
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Is your contact information up to date?
If not please give us a call @ 866-APF-3635 or Email to firstname.lastname@example.org
American Porphyria Foundation|
"Remember....Research is the Key to Your Cure!"