Our deepest thanks goes out to all of you for making this one of the best Porphyria Awareness Weeks ever! Despite social distancing demanded by the COVID-19 pandemic, so many of you stood up and did your part by sharing stories, writing legislators, downloading information for distribution and wearing awareness apparel - all at a safe distance!
We hope that you don't stop here! Spreading awareness is an ongoing process. You can still lead the way by sharing your thoughts, stories and memories with the APF and the whole world - all year long. Educational materials are always available at
Take a look at some of your amazing efforts!