April 25, 2020
Saturday April 25
Our deepest thanks goes out to all of you for making this one of the best Porphyria Awareness Weeks ever! Despite social distancing demanded by the COVID-19 pandemic, so many of you stood up and did your part by sharing stories, writing legislators, downloading information for distribution and wearing awareness apparel - all at a safe distance!
We hope that you don't stop here! Spreading awareness is an ongoing process. You can still lead the way by sharing your thoughts, stories and memories with the APF and the whole world - all year long. Educational materials are always available at  www.porphyriafoundation.org .
Take a look at some of your amazing efforts!
Alnylam employees around the world hosted purple spirit days at home with loved ones to show their support of the porphyria community.
There's still time to get your porphyria gear to spread awareness all through the year! With different apparel options, umbrellas, pens, jewelry and more, you can look sharp while raising awareness.

The APF online store is a great resource for educational materials as well - check it out!

Get Involved * Stay Safe
Contact Information

Is your contact information up to date?
If not please give us a call @ 866-APF-3635 or Email to info@porphyriafoundation.org

American Porphyria Foundation| 1.866.APF.3635 | porphyriafoundation.org
"Remember....Research is the Key to Your Cure!"