FEBRUARY, 2025

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Celebrating Our 2024 Advocacy Accomplishments

children visiting the U.S. Capitol

To all our advocates, partners, and friends of vision and eye health, Prevent Blindness shares our best wishes for 2025!


2024 was a very active year for Prevent Blindness government affairs and advocacy with some major goals met and new levels of engagement achieved, and so here’s a quick recap of our outstanding year in advocacy:

 

  • The bipartisan Early Detection of Vision Impairments for Children Act (EDVI Act) to create the first federal program on children’s vision and eye health was introduced on May 14, 2024, by Reps. Gus Bilirakis (R-FL) and Marc Veasey (D-TX). The legislation was initially supported by 18 national groups, but that number has grown to more than 100 groups across the United States endorsing EDVI. In Congress, the legislation gained 10 cosponsors by the end of December.



  • Around 75 advocates participated in the ASPECT Patient Engagement Summit in May, and took part in the first in-person “Eyes on Capitol Hill” Legislative Advocacy Day since 2019. Together, advocates applied their legislative advocacy skills to push for Congressional support of the EDVI Act, encourage federal investments in vision and eye health programs, and share their stories with lawmakers in Congress.


  • Prevent Blindness hosted a successful Congressional briefing and screening event to recognize World Sight Day 2024 with both co-chairs of the CVC attending and delivering remarks to briefing attendees.


  • Prevent Blindness joined several new coalitions and continued our engagement with patient advocacy groups to advocate for access to innovations for patients with rare disease, legislate solutions to address harmful utilization management practices such as step therapy and prior authorization, protect federal funding for essential public health and research programs at the Centers for Disease Control and Prevention (CDC) and the National Institutes of Health (NIH), and elevate the patient voice in conversations around topics such as telehealth, drug pricing policy, and community health centers.
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Looking Ahead to 2025:

A New Congress, A New Administration,

A New Agenda

ep Neal Dunn (R-FL) with Sara Brown, Prevent Blindness Director, Government Affairs
Rep. Adrian Smith (R-NE) with Sara Brown, Prevent Blindness Director, Government Affairs

Prevent Blindness government affairs was on Capitol Hill recently to welcome the newly sworn-in 119th Congress. Pictured here: Sara Brown, Director of Government Affairs, with Rep. Neal Dunn (R-FL) and Rep. Adrian Smith (R-NE).

The new 119th Congress was sworn into office on January 3, 2025, and Prevent Blindness was on Capitol Hill to discuss our national vision and eye health policy priorities with new and returning Members and to invite them to join the bipartisan Congressional Vision Caucus. Already, the state of play in Washington, DC is proving that this will be a very challenging era! The Republican Party holds the majority in both the House and the Senate; however, the margin of control is tight in both chambers with Republicans holding a 4-seat majority over House Democrats and a 6-seat majority over Democrats in the Senate. With a lofty Trump Administration-backed legislative agenda that includes a budget reconciliation package, an extension of first-term Trump-era tax cuts, and a debt ceiling increase, most legislation may need to wait until after the first 100 days of the new Trump Administration to be considered.


Complicating this, the 118th Congress finished its very contentious December session without having passed the final bill on Fiscal Year 2025 appropriations. Instead, Congress passed another continuing resolution (CR) to fund the government until March 14 with lawmakers yet to negotiate what major policy proposals that were ultimately removed from the March 14 CR will be included in the final bill. This “old business” is running alongside the “new business” of assigning House and Senate legislators to new Committee and leadership posts, confirming nominees for key Cabinet posts and agency heads, and keeping up with the flurry of activity from the Trump Administration, which was inaugurated on January 20, 2025.


Speaking of which, the first two weeks of the second Trump Administration have proven to be a near-180° pivot from the Biden Administration in both process and substance. While it is typical for a new President to introduce a flurry of Executive Orders and rescind policies from the preceding Administration, many of these new directives have had direct impacts on public health and medical research communities.


Below are some key directives that Prevent Blindness is monitoring and working to understand:



Most recently, the Trump Administration caused significant confusion across the country by placing a freeze on all federal assistance, including grants and loans, in an effort to determine whether programs are in alignment with the Administration’s agenda. At the time of this newsletter, it remains unclear what direction the Trump Administration will take in fulfilling existing funding obligations. Prevent Blindness continues to remain diligent and informed with our partners, colleagues, and fellow patient advocates to understand the implications of these and many forthcoming policies. 

What Advocates Can Do in 2025

The peaceful transition of power from one Congress and one Administration to the next will always come with some time needed to acclimate to the new administration. Prevent Blindness will continue to stay true to our mission to prevent blindness and preserve sight and look for every opportunity to elevate the patient voice through all of these and other changes. Now more than ever, we invite our advocates to lend a hand and consider the following actions:


Sight-Saving Policy Updates from

Prevent Blindness

Prevent Blindness is an active participant in numerous coalitions and working groups that collectively work together to achieve various outcomes on legislation and other matters of public policy. Below are a few examples of our recent work on behalf of patients with vision loss, eye disease, and blindness.

  • Prevent Blindness Welcome Letter to Members of the 119th Congress
  • Prevent Blindness sent a letter to the Acting Administrator of the Centers for Medicare and Medicaid Services (CMS) in support of expanding coverage for anti-obesity medications in Medicare Part D and Medicare Advantage

This information is made possible in part

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