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Welcome to the July edition of the Quality Insights Renal Network 4
Network Notes patient e-newsletter. In this issue, we bring you information about kidney health getting attention in Hollywood, a renal failure tool, resources for care partners, a patient spotlight and much more!  We encourage you to  contact us (http://www.qirn4.org/Contact-Us.aspx ) with any questions, concerns or suggestions. 
RenalFailureToolcheck out this Renal Failure Zone Tool   
Renal Failure Zone Tool
Taking care of yourself and keeping yourself healthy is sometimes really hard work. Check out this tool
(http://bit.ly/RenalFailureTool), developed by ESRD Network 14, to help you understand and respond to what your body is telling you.     
KidneyHealthGoinginStyleKidney health is going hollywood    
Check out this article ( https://www.kidney.org/newsletter/kidney-health-going-to-hollywood) from the National Kidney Foundation (NKF) about how the topics of kidney health and organ donation are getting more attention through the movie Going In Style.  
HelpfortheCarePartnerhelp for the care partner    
Home Dialysis Central recently published a blog post about resources and help for active care partners. Home Dialysis Central is a program of the non-profit organization Medical Education Institute (MEI). MEI was established in 1992 to help people with chronic disease learn how to manage and improve health.  Read the article at http://homedialysis.org/news-and-research/blog/194-help-for-the-care-partner .  
AAKPScholarshipsAAKP SCHOLARSHIPS AVAILABLE FOR NATIONAL PATIENT MEETING
The American Association of Kidney Patients (AAKP) is offering scholarships for the September 8 - 10 AAKP National Patient Meeting in St. Petersburg Florida. The scholarship application deadline is  August 1, 2017 Download the application Learn more
KCERbookkcer revises emergency preparedness book
Kidney Community Emergency Response (KCER) has revised the English version of the book Preparing for Emergencies: A Guide for People on Dialysis.  You can find the new edition by visiting http://bit.ly/KCERBook. 
RSN Essay Contest RSNEssaySubmit Your entry to the Renal Support Network's 2017 essay contest
The Renal Support Network (RSN) is looking for entries for its 2017 essay contest. The topic/theme this year is "Describe a positive decision that you have made about your healthcare." The top three winners will receive a cash prize. Learn more and submit your entry by following this link:
FacebookHave you found us on facebook? 
Network 4 posts the latest happenings and interesting insights for the dialysis community on our Facebook page (www.facebook.com/ESRDNetwork4/). If you haven't already, please check us out and "like" our page to make sure our posts find their way to your news feed. You can read stories like this and more: 

PatientAdvocateSpotlightPatient advocate spotlight: bill
Bill
Murray
Raising awareness, talking to legislators and helping people better understand the dialysis community are all part of a typical day's work for Bill Murray. 

Before being diagnosed with chronic kidney disease, Murray worked as a self-employed plumber. Initially told he would only have five years until he would need to start dialysis, Murray made it to 16. But once he began his six-days-a-week dialysis treatment, he quickly lost his strength, struggled to keep working and had to close his business.

No longer able to work and fighting to stay alive each day, Murray found his new calling in life: advocacy. Read Murray's full story ( http://bit.ly/NW4PatientSpotlight).

laughing_businessman.jpg laughterwebinarhow can laughter help you? join this special webinar
Did you know that laughter therapy can have great health benefits if you're on dialysis? Laughter therapy consists of breathing and stretching exercises followed by intentional laughter exercises and laughter meditation. It is a safe, low-intensity form of physical activity during dialysis that is connected to the reduction of chronic pain and depression. 

On Thursday, July 27, from 2:00 - 3:00 p.m. ET, Dr. Paul Bennett, Director of Medical & Clinical Affairs at Satellite Healthcare, will explore this new and unique method of therapy. 

You will learn more about:
  • The use of laughter therapy during dialysis
  • The benefits of laughter therapy
  • Laughter programs and how to access details of these in order to apply them to your own life or practice 
Register for this free webinar by visiting http://bit.ly/LaughterWebinar. Learn more about this and other upcoming webinars by visiting http://www.KidneyFund.org/webinars. 

PatientRepPacketPatient representative program update
In June, the Network distributed Patient Representative Packets to all facilities that had a registered Patient Representative. If you're a Patient Representative, ask your facility about these packets. The packets included the following materials:
  • A copy of the NEW 2017 Network 4 Patient Representative Handbook
    • The new 2017 Patient Representative Handbook serves as a playbook of resources for you.
    • This hard copy should be kept at the dialysis facility so any Network 4 Patient Representatives can access it as needed.
    • The facility manager or social worker will find a spot where Network 4 Patient Representatives can keep their Network 4 documents and resource tools.
  • Network 4 Patient Representative Pin(s)
    • At least one Patient Rep pin was sent.
    • This pin can be worn by Patient Reps while in the facility.
    • The pin should be stored at your facility.
    • The network has a limited amount of these pins. We will not be able to re-stock if these pins get lost or sent through a washing machine.
  • The Network also provided useful documents to the facilities designed to  help select additional Network 4 Patient Representatives. These documents included:
    • Network 4 Patient Representative Selection Flow Chart
    • Network 4 Patient Representative Job Description
    • Network 4 Patient Representative Orientation Check list
    • Network 4 Rack Card - Can be passed out to fellow patients. The network can supply more of these cards if you want to pass them out.
If you are interested in becoming a Network 4 Patient Representative or learning more about this program, please speak with your social worker for more information or visit our website at : http://www.qirn4.org/Patients-and-Families/Patient-Representative-Program.aspx. 


QuarterlyActivityQuarterly Activity: Adult Immunization Word Search 

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Do find this newsletter helpful? Are there things you'd like to see changed? Please take this short survey (http://bit.ly/Net4Feedback) to provide your feedback. Please submit any items of interest for this newsletter to Tish Lawson (plawson@nw4.esrd.net). 

FilingGrievances Filing Grievances
To file a grievance, please contact us by using the following contact information.  
 
 
610 Freedom Business Center,  
Suite 102 
King of Prussia, PA 19406 
(610) 265-2418 
(800) 548-9205 (patients only) 
(610) 783-0374 (fax) 
This material was prepared by Quality Insights Renal Network 4 under contract with the Centers for Medicare & Medicaid Services (CMS). The contents do not necessarily reflect CMS policy. 

Publication No. ESRD4-063017b