stay connected
In This Issue


Quick links


We Want your Feedback

Tell us what information you 
liked in this newsletter and 
what topics you would like 
to read about in the next 
Network 4 patient newsletter. 
Please leave us feedback by 
taking this short survey: 
Scan the QR code below to quickly access our website


Welcome to the September 2018 edition of the Quality Insights Renal Network 4  Network Notes patient e-newsletter. In this issue, we bring you information about becoming a Network 4 Patient Representative, information about vaccinations, links to our online resources and more.  We encourage you to  contact us (http://www.qirn4.org/Contact-Us.aspx ) with any questions, concerns or suggestions. 
PatientRepAre you interested in becoming a Patient Representative?    
Quality Insights Renal Network 4's Patient Representative Program is made up of people who are on dialysis or have had a kidney transplant and have been chosen to serve as Patient Representatives at their clinic. Our goal for this program is to have Patient Representatives spread the word that Dialysis Means Life (DML). Patient Representatives volunteer to serve as liaisons to Network 4 and the dialysis facility administration. The Network provides Patient Representatives with information from the Network and its various committees. The information may be in the form of news from the Centers for Medicare and Medicaid Services (CMS) or educational materials to be handed out to fellow patients.

Patient Representatives may be asked to:
  • Assist with special projects at the dialysis facility.
  • Act as mentors, particularly to new patients, introducing them to Network activities and publications, including the Network 4 patient rights and responsibilities, Network 4 grievance procedures and the Network newsletters.
  • Bring patient concerns and questions to the facility administration during Quality and Governing Body meetings.
  • Contact the Network at the toll-free number to report patient concerns or questions from your facility.
Learn more about the Network 4 Patient Representative Program by watching this video (https://youtu.be/Iuu7M2kjqzQ).
Immunization Graphic VaccineYou can help prevent pneumonia with a vaccine   
About 1 million Americans go to the hospital with pneumonia every year. Pneumonia is a lung infection caused by pneumococcal disease, which can also cause blood infections and meningitis.

The pneumococcal vaccine is the best way to help prevent certain types of pneumonia and other pneumococcal infections. Medicare Part B covers the initial vaccine shot, plus a second vaccine shot (a year after you receive the initial shot). Ask your doctor if you need one or both shots.

Wondering about other vaccines covered under Medicare? We encourage you to watch this short video (https://youtu.be/ArBQ0G7mYw4) to learn more.
PatientRep2network 4 patient representative featured in National kidney foundation newsletter 
Allen Nelson, a Network 4 Patient Representative Subject Matter Expert (SME) for the Bloodstream Infection (BSI) project, as well as Vice Chair of the Network 4 Board of Directors was recently featured in the National Kidney Foundation (NKF) newsletter. Read about Allen's journey (https://www.kidney.org/newsletter/dialysis-patient-helps-others-peer-mentor).  
NKFNational kidney foundation launches new online pediatric community 
In September, the National Kidney Foundation (NKF) launched a new online pediatric community just for parents of children with kidney disease.  Learn more about this new pediatric support service for parents ( https://www.kidney.org/news/new-pediatric-online-community-parents-children-kidney-disease).  
AAKPJoin the AAKP HealthLine webinar 
Please join the American Association of Kidney Patients (AAKP) on Tuesday, October 9, 2018 at 1 p.m. ET for an educational webinar on Making the Perfect Team: Working with Your Dialysis Technician in partnership with National Association of Nephrology Technicians/Technologists (NANT).

AAKP is celebrating National Dialysis Technician Recognition Week October 14-20. Learn how to thank and celebrate this important part of your dialysis care team. Hear from President-Elect of the National Association of Nephrology Technicians/Technologists (NANT), Dwelyn Williams, CCHT as he describes the important role of the dialysis technician and the special relationship they have with their patients. AAKP Ambassador Bruce Tippets, currently on in-center hemodialysis, talks about how his dialysis technician has helped him through his dialysis journey.

kcercheck out kcer watch 
KCER Watch provides timely and pertinent information related to emergency preparedness This month's KCER Watch is located at  https://www.kcercoalition.com/en/resources/kcer-watch/. Please feel free to provide comments and feedback. 
Newtoolnew tool: emergency preparedness checklist 
Kidney Community Emergency Response (KCER) recently developed an emergency preparedness checklist for people on dialysis. Check it out at  https://bit.ly/2xS2RD9. 
Resources2Looking for resources? 
check out our website 
Quality Insights Renal Network 4's website provides a list of monthly patient-focused resources just for you. Visit www.qirn4.org/Patients-and-Families/Patient-Education to see what's available. Topics include: 
  • What is "The Network?"
  • Exploring Treatment Options
  • How to Access and Use Dialysis Facility Compare
  • Much more!
FacebookHave you found us on facebook? 
Network 4 posts the latest happenings and interesting insights for the dialysis community on our Facebook page (www.facebook.com/ESRDNetwork4/). If you haven't already, please check us out and "like" our page to make sure our posts find their way to your news feed. You can read articles like this and more: 

Do find this newsletter helpful? Are there things you'd like to see changed? Please take this short survey (http://bit.ly/Net4Feedback) to provide your feedback. Please submit any items of interest for this newsletter to Tish Lawson (plawson@nw4.esrd.net). 

FilingGrievances Filing Grievances
To file a grievance, please contact us by using the following contact information.  
 
 
610 Freedom Business Center,  
Suite 102 
King of Prussia, PA 19406 
(610) 265-2418 
(800) 548-9205 (patients only) 
(610) 783-0374 (fax) 
This material was prepared by Quality Insights Renal Network 4 under contract with the Centers for Medicare & Medicaid Services (CMS). The contents do not necessarily reflect CMS policy. 

Publication No. ESRD4-092018