Any of these comments sound familiar?
Just a few of the comments we picked up through your
Big thanks to the HH community for participating in the Comorbidity survey. More than 250 individuals form 20 different countries participated. Survey findings will be shared with the Hope for HH Medical Advisory Board as well as well as the 60+ international experts converging on Washington DC Sept. 12-14 for the 4th International HH Symposium to set a research roadmap for HH.
Thanks to our survey leaders - Erica Webster and Lisa Soeby - for their efforts in developing, disseminating, and analyzing the survey results. And special thanks to Roza Wu for undertaking to translate the survey in Russian and extended outreach to patients throughout Eastern Europe and Northern Asia. Stay tuned for a summary we will share with our patients and families.