We are thrilled to share the first article titled "Comorbidities of Rare Epilepsies: Results from the Rare Epilepsy Network" was recently published in The Journal of Pediatrics.
Thank you to all of the HH patients and caregivers that shared your information to help illuminate how HH impacts the patient and caregiver.
Huge thanks also to REN leadership team who have devoted countless hours to bring the database and analysis to fruition. Hope for HH is proud to partner with 30 other rare epilepsy advocacy organizations on this critical initiative. Our communities are stronger working together to improve the lives our rare patients. To see an abstract, click here.