APRIL 2019
In this edition...state plan amendment update, Data Nugget on parents with developmental disabilities, register for the AIDD Technical Assistance Institute and NACDD conference, download toolkits on cultural competency, view a special DD Council highlight and more...

Questions/comments or to submit content for consideration, contact
Angela Castillo-Epps   or call 202-506-5813, ext. 100.
FY 2017 and 2018 PPR’s have been submitted – Now what?
AIDD Program Specialists are reviewing the required federal reports. If they have questions or need additional information on the submitted reports, they will contact the person identified on the report as the “contact person regarding PPR information”.

ITACC staff have been hearing from Council staff about their experiences in completing the report and are developing a short survey about the PPR TA materials and reporting system information. The purpose of the survey is to identify areas where TA guidance and materials can be improved to ensure Council staff have the information needed to help with the reporting process. The survey will launch later this month.

State Plan Amendments
State plan amendments (goal additions, deletions, major changes) are due no later than August 15, 2019.  

As the August date approaches, Council staff will be asked to inform the assigned AIDD Program Specialist of the Council’s intent to amend the Council State plan for FY 2020.

As a reminder, amendments must be made available to members of the public for a minimum 45-day public comment period (note: if the State/Territory requires a longer public comment period, please use that time period). 

In general, we recommend the proposed amendment(s) be made available for public comment no later than June 1st. If using June 1st as the date, the 45-day public comment period would end July 15th and allow Council staff 22 work days to prepare the State plan amendment document in ACL Reporting.

The major variable in timing is whether the Council would expect substantial public comment opposing the amendment. If the Council expects opposition, please consider starting your comment period earlier to allow the Council time to consider the public comments and decide about further changes. If the Council makes major changes to the proposed goal, another 45-day public comment period is required.

If a Council wants to prepare for two public comment periods, we recommend the amendment be released for the first public comment by mid-April, early-May.

For more information on State plan amendments, please visit the website and access the State Plan Amendment/update resource .
2022 - 2026 State Plan Development
2022-2026 DD Council State Plan: Developing a Planning Timeline
  • Several Councils have indicated they are beginning the next state plan development process. We have updated a State plan development timeline resource for your use.  

2022-2026 DD Council State Plan Development Poll
  • ITACC staff is preparing for technical assistance activities on State plan development. In doing so, we’d like to have your input on the following item – please complete the poll below.

A “Using the National Data Sets” webinar to help inform the Comprehensive Review and Analysis section of the next 5-year plan is being planned. 
Would it be helpful to have the webinar in...
July or August 2019
September or October 2019
January or February 2020
AIDD Technical Assistance Institute
Technical Assistance Institute, Updates and Registration
TAI Update:
The planning committee has been busy meeting to develop an information-filled 2019 Institute. A Promising Practices Showcase is a planned feature on day one and topic highlights include Council practices on sub-awardee support and engagement, risk assessment and sub-awardee performance, Council staff and committee structure, and tracking national, state, and local policy with a small Council staff. Day two will feature information to inform work and related activities on measuring DD Council Outcomes and Performance and more! We are in the final stages of developing the full agenda, learning objectives, and session descriptions and will share widely once finalized.
The 2019 planning committee members are: Ann Trudgeon, OK; Tedra Jackson and Vendella Collins, MI; Beth Swedeen, WI; Wanda Willis, TN; Kellie McCain, KY; Brooke Lovelace, IA; Dan Shannon, MA; Daintry Bartoldus, HI; Mariel Hamer, IL; Jessica Pidgeon, NY, Sara Newell-Perez, AIDD; Teresa Nguyen, AIDD.

Register Today:
Registration for the AIDD Technical Assistance Institute (TAI) is required even though there is no charge for the event. Registration helps ITACC staff prepare materials and requested accommodations for full participation for full participation. Use the link below to register today! If you need assistance with registration, contact . WEBSITE UPDATES
New Executive Director Orientation Resources 


DD Act Education & Resources
What does the DD Act Say?

(6) REVIEW OF DESIGNATED STATE AGENCY.—The Council shall periodically review the designated State agency and activities carried out under this subtitle by the designated State agency and make any recommendations for change to the Governor. Sec.125 (c) (6)

To better understand the of reviewing the Designated State Agency, ITACC created a new resource that covers frequently asked questions along with information on criteria, review and appeal process.

To access the Review of the DSA resource, visit the Council Directors page of the website or click below.
DICLC Strategies Developed  by and  for DD Councils
Many DD Councils are working to embed the principles of diversity, inclusion and cultural and linguistic competence in all aspects of their work. For one example, click below on the
tool kits submitted by the Pennsylvania Council.

Paving the Way a Toolkit for Assessing & Advancing Cultural Competency
The toolkit is presented to each DD Council grantee. The grantees complete the assessment piece (pages 7-20) at intervals to track their improvements in cultural competency. Grantees reported that the toolkit was a very useful tool to assess staff and make improvements on engaging diverse communities. The toolkit is linked below in English and Spanish.
NACDD Annual Conference - Register Today!
The NACDD 2019 Annual Conference registration is now open!

Thanks to the creative minds on the Conference Planning Committee and the NACDD staff, the theme of the 201 9 conference will be: Jazz It Up! Building on Our Potential

We will be at the Sheraton, New Orleans on July 10 th-11th. We hope you will join us for an educational and fun event! For support with registration, contact

Click on the link below to register today!
Thank You! DD Awareness Month
We want to thank all of your for all of your amazing work during Developmental Disabilities Awareness Month and raising awareness with the #DDAwareness19 hashtag.

Even though March is over, it is not too late to spread awareness about the inclusion of people with developmental disabilities in all areas of community life! Please continue to use the #DDAwareness19 hashtag throughout the year when sharing on social media. Please email or call 202-506-5813 with any questions.
DATA "Nugget"  - Parents with Disabilities
What can states learn from NCI™ results 
about people with disabilities who are parents?
In the 2017-2018 National Core Indicators In-Person Survey, 4.5% of respondents were reported to be parents.  

Why does it matter? As a field, we continue to move towards a society in which people with I/DD engage in all aspects of the human experience, including intimate relationships and parenting. Up until recently – and perhaps still happening in some states, children of parents with disabilities were referred to the state child welfare agency and were brought into state care to be fostered or adopted.

Though this practice is no longer the default response, the standard menu of supports in most states does not include services specifically aimed at parents with disabilities. There are also legal issues that parents with disabilities may be more likely to face including questions about guardianship, and medical consent issues surrounding pregnancy and the health of their child. For those individuals who may decide not to raise a child, the availability of adoption opportunities and counseling are necessary resources.

National Core Indicators  (NCI)   is a collaborative effort between the National Association of State Directors of Developmental Disabilities (   NASDDDS   ) and the Human Services Research Institute ( HSRI   ).   
Here are just a few ways that DD Councils may be able to use this data...

> Advocate for housing policies that include residential supports for parents with disabilities.

> Advocate for policies that provide employee benefits for parents with disabilities to have access to parental leave rights.

>Convene a collaborative work group of state agencies to combine resources and support efforts to educate parents with disabilities about child rearing issues.
employed parents have access parental leave policies.

For more information and resources related to this topic, click below for the FULL data brief.
COUNCIL HIGHLIGHT ~ Intelligent Lives
Intelligent Lives on Capital Hill!
Supporting inclusive education and competitive, integrated employment (Directed by Dan Habib)

NACDD hosted a live, interactive screening of Intelligent Lives on capital Hill. The documentary shares personal stories from three young adults who challenge perceptions of intelligence while navigating high school, college and the workforce. The screening and subsequent resource fair were part of NACDD's national DD Awareness Month Campaign. Congratulations to the DD Councils who also took advantage of highlighting this moving and educational film. Mississippi, Maine, Connecticut, California, PA, Georgia, Minnesota, South Carolina and Indiana ~

For more information on the film and to access the Intelligent Lives Resource Library, click below on the Intelligent Lives Website.
DD Councils, this Council Highlight is your opportunity to share strategies, policy and initiative successes, resources and more. Contact Angela at or call 202-506-5813 by the 30th of each month to submit content for consideration.
To reach NACDD/ITACC staff, please feel free to contact:

Sheryl Matney Director of Technical Assistance
202-506-5813 ext. 148,

Angela Castillo-Epps Technical Assistance Specialist 
202-506-5813 ext. 100,