Hi Cure,

If you missed yesterday’s exciting news about a new gene-editing grant from the NIH awarded to Yale University, FAST, and RUSH Medical Center, you can read the announcement here!

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

The 16th Annual Global Science Summit schedule is now available!

Check it out here:

Recently, an article was published from the work supported by FAST and the Angelman Syndrome Biomarker and Outcome Consortium (ABOM) which emphasizes the importance of considering motor function as a critical aspect of Angelman syndrome. Work like this study helps move us toward the development of meaningful and measurable endpoints for AS.

Read more about this new study:

Our 2023 Cure Angelman Now (CAN) campaign is coming to an end on October 31, 2023! 

If you are looking for a few ways to support our annual CAN campaign before it ends, please reach out to Elizabeth O'Connor at elizabeth.oconnor@cureangelman.org for ideas. Sometimes, a simple email to family and friends sharing exciting news from FAST is all you need to inspire support. Regardless of how you join this effort, we recognize it takes courage and commitment to raise money and we are here to help you, help us, tackle the challenge.

Support a CAN fundraiser or start your own:

Calling all Florida residents! Lisa and Ian Hoffman, parents of Heath, who lives with AS, are hosting their 1st annual Hole Out Fore Heath Golf tournament in New Smyrna, FL! This is a great way for the AS community to get involved without having to plan an event. Registration is open so gather some friends to golf in this 4-person scramble event!

Register for the event now:

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