International CVS Awareness Day
Thank you to everyone for helping raise awareness! You helped make International CVS Awareness Day a huge success! This has been a huge event for CVS as a whole.
Thank you to the Niagara Falls Illumination Board for Lighting up for International CVS Awareness Day.

Below are some pictures sent in by you:
Zakim Bridge (MA)
Longfellow Bridge (MA)
Niagara Falls (NY/ON, Canada)
Zakim Bridge & Boston Gardens (MA)
Fore River Bridge (MA)
Skydance Bridge (OK)
Other places that lit up:
  • Burns Bridge (MA)
  • Gilbert Water Tower (AZ)
  • High Level Bridge (Edmonton, Canada)
  • Capella Tower (MN)
  • Mayo Clinic (MN)
Light Ups in the UK Provided by CVSAUK:
  • Gateshead Millennium Bridge (Gateshead, UK)
  • Eastgate Tower (Chester, UK)
  • St David's Cathedral (Haverfordwest, UK)
Here are some pictures people shared with CVSA
Makenzi Fuqua sent a picture of her at the Skydance Bridge sharing her support for International CVS Awareness Day.

Amylynn Michelle sent a picture of her daughter at Niagara Falls. They drove to Niagara Falls to celebrate as it lit up in honor of International CVS Awareness Day.
This photo was sent in by Laura Bishop
of her girls by the Zakim Bridge. They went to share their support and awareness of their CVS.
This event was seen by many people far and wide. CVSA UK helped bolster the total light ups, by having more places added internationally. With everyone's efforts in posting and sharing the event, along with all of the places lighting up, there was a large increase in people reaching out for information on CVS. Your efforts made a big difference! We want to make this event even bigger next year and you can help!
If anyone would like to volunteer and help out, in preparation for next year, contact the office at

Thank you everyone for helping raise awareness! It was a huge success!
Updating the Pediatric Guidelines

The project to update the pediatric guidelines is expected to be completed later this year!

See the following link for more information:
AAN and Neurology
CVSA recently attended the American Academy of Neurology conference (AAN) as an exhibitor. By exhibiting at this conference, it enabled CVSA to provide education, information, and awareness of CVS to medical professionals, in the field of neurology. 

CVSA has been receiving an increased number of requests for medical professionals in the field of neurology. This has prompted CVSA to work on gaining more access and increasing recognition of CVS in this specialty.
Every participant makes a difference!
If you would like to participate in this first ever CVS clinical trial, there is no better time than now!
The study is ongoing, however the final spots are filling up and enrollment has been going strong.
Become part of the clinical trials for the first ever medication developed to treat CVS and help change the future of CVS treatment. Hurry before enrollment closes!
Here is a few reasons to become a participant:

  1. Your involvement helps researchers and scientists gain more of an understanding of cyclic vomiting syndrome and how to help patients.
  2. It gives access to cutting-edge treatment options.
If you would like to participate in this study, please check the clinical trials website
periodically, as additional clinical trial sites will be added as they are ready to start enrolling patients.

**Please note: All requests for more information or questions regarding the trials need to be directed to the trial website listed above.**
Join CVSA on Monday, May 9th, at 6 PM PST, for the monthly support call on our new Zoom platform! Have questions?
Newly diagnosed?
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The support call is the place to be.
Thank you to all of whom have set up fundraisers on Facebook with Facebook Donations!

Please note that due to Facebook's algorithms and privacy restrictions, CVSA is unable to determine the dates that fundraisers take place.

Check out our fundraising page for ideas.