Digestive Disease Week
The Cyclic Vomiting Syndrome Association staff and volunteers were able to attend Digestive Disease Week 2022 (DDW) to promote more medical awareness and recognition of cyclic vomiting syndrome.

DDW is Sponsored by four leading societies — AASLD (American Association of the Study of Liver Diseases), AGA (American Gastroenterological Association), ASGE (American Society for Gastrointestinal Endoscopy) and SSAT (The Society for Surgery of the Alimentary Tract) and has a worldwide reach among GI Specialists. DDW was held in San Diego, CA from May 22 to May 24.

The Cyclic Vomiting Syndrome Association handed out hundreds of articles, publications, brochures and pamphlets on cyclic vomiting syndrome (CVS) and had opportunities to discuss disparities in treatment of CVS patients with attendees. The Adult Treatment Guidelines, that CVSA published open-access in 2019, was the most popular document handed out with the article that discusses cyclic vomiting syndrome (CVS) vs cannabinoid hyperemesis syndrome (CHS) following close behind.

CVSA staff and volunteers were able to engage with medical professionals whom had impactful questions, conversations, and exchanges. There was a profound interest in learning and treating those with CVS. Many physicians had stories to share about “that one patient” that they reflected on. The "one" whom lit their fire of interest that inspired them to learn more about CVS, and will be watchful for any encounters with CVS going forward. Some people even had personal stories of friends or family that had a cyclic vomiting syndrome connection.

With the more than 11,000 people in attendance, CVSA had a very strong showing for the quantity of materials, education and information that were able to handed out at this event. There were several research papers and presentations that included cyclic vomiting syndrome. There was even a presentation that was given by a CVSA Medical advisor, Dr. Thangam Venkatesan.

CVSA was very excited to have had the opportunity to attend and contribute at this event and see the research being done that will help drive more exploration into CVS research.

Look out for CVSA attending other medical conferences this year, as we continue to push medical awareness and recognition of CVS. Other conferences this year that CVSA has scheduled to attend for medical outreach programs are American Nuerogastroenterolgy and Motility Society (ANMS) and American College of Emergency Physicians (ACEP).
Summer is Coming, Are you Prepared?
See these 7 tips for smoother sailing this summer. It never hurts to be prepared. Whether you are traveling or are staying at home, the more prepared you are the better off you will be:
2.) Have Abortive Medication Ready.
No matter where you go or what you are doing, always have your abortive medications with you. If you do not have any, it is highly recommended that you discuss available options with your primary care physician. If they are having a hard time identifying potential options, look no further than the adult guidelines on the cvsaonline.org website under resources for health providers.
4.) Consider the Temperature.
CVS patients can be very receptive to temperature, both hot and cold. For those who do not do well in the heat, having cooling towels on hand to keep cool can be a tremendous help. If the cold is an issue, you may consider heating pads or hot packs for relief.
6.) Stay hydrated.
Keeping up on your hydration can have a variety of benefits. It can help with headaches, sleep, focus, mood, overall health, etc. Always be aware of your fluid intake.

1.) Watch out for your Triggers.
This includes, but is not limited to, being aware of your triggers or keeping a documented log to find them. Whether that be from food, lack of sleep, or any other kinds of triggers you have identified that can sneak up on you.
3.) Manage your Nausea
Many CVS patients struggle with nausea and motion sickness. Having motion sickness aids on hand can help. Sea Bands, Relief bands, salty snacks, and peppermint can help with nausea and can be used in addition to other motion sickness products.
5.) Bring a Bag!
While some CVS patients always keep Ziploc bags on them, there are a wide variety of emesis bag options on Amazon
7.) Get Plenty of Rest.
This one is self-explanatory. The season can be an exhausting time, so just be aware of the amount of rest you are getting. Fatigue can also be a trigger for some.
Update on the Pediatric Guidelines

The project to update the pediatric guidelines is on-going and expected to be completed later this year!

Stay tuned for more updates, and see the following link for more information: https://www.cvsaonline.org/pediatric-guidelines-update-project/
**Any and all purchases made support the CVSA mission to provide information, support, and spread awareness of CVS to help fund research towards a cure.**
Have questions?
Newly diagnosed?
‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎‎Feel like you're alone?

The support call is the place to be.

Join CVSA on Monday, June 13th, at 6 PM PST, for the monthly support call on Zoom!
Looking for Ways to Help?
Want to help Light up Awareness of CVS for the next International CVS Awareness Day?
Your efforts can make a big difference!
If you would like to help CVSA request locations to light up, click below.
Interested in helping others, who have CVS, or just want to help spread awareness of CVS? Consider volunteering and helping out.
Using Amazon Smile allows a portion of your purchase to go to a charity of your choice, like CVSA.
It does not add anything to the cost of your purchase.
Thank you to all of whom have set up fundraisers on Facebook with Facebook Donations!

Please note that due to Facebook's algorithms and privacy restrictions, CVSA is unable to determine the dates that fundraisers take place.

Check out our fundraising page for ideas.