Members of the FAST Community, 

We sit at the intersection of hope and reality. We are here because of our supporters' tenacious fundraising, as you can see by the FAST-funded programs below, and the work of the brightest scientific minds in their field. 

The FAST Board hopes this message finds those who were able to attend the 2019 Global Summit and Gala safely home and those who shared in our excitement through our live feeds or social media, filled with tremendous joy as we watch our wildest dreams coming true.

We close out this year and turn our attention to a transformational new year, 2020. Please join us on this journey by following along with our social media channels. FAST will keep you informed regarding the announced trials and new efforts to #CUREangelmanNOW . This is an incredibly exciting time for Angelman syndrome , and we thank you for your continued support.

As soon as additional information about these clinical trials become available, FAST will provide the information through our webpage and social media channels.

While we wait in anticipation, there are things you can do today, as parents and caregivers, to get ready and accelerate both the announced trials and any future trials.

Today, you can participate in the ORCA survey to help create the most comprehensive assessment tool and outcome measure on communication by those with AS.

You can also join the Global Angelman Registry or, if you have already joined, go back and ensure that you have completed all sections , something only a small fraction of participants have done.

2019 has been one of those years, I'm sure we've all had one. One where it feels like for every ten steps forward you take three hundred steps back. My family was at a loss, way too many times and wishing this year would come to a close was a constant plea. I have to say I was resolved to cruise past the gala with my sights set on a new year. 
When I arrived in Chicago for my first gala, I dove right in, and I am so very glad I did. Like many had promised, I became almost immediately consumed with excitement, hope, and joy. I'm a BIG fan of celebrating successes - not drowning in comparisons of where my son is compared to others his age, typical or not. The 2019 FAST Gala was most certainly a celebration of the successes of our community. 
I am no longer in a rush for 2019 to come to a close, and I will confess that I am still living on the high of the 2019 FAST Gala and enjoying all the post-gala social media. Yet while 2019 closed on a high note, I know I speak for us all when I say that I am ready for 2020 – the year of human clinical trials treating individuals with Angelman syndrome. 
As FAST CSO Allyson Berent so passionately described during the gala, "life is so often based on FIRST TIMES." Well, my friends, we are on the cusp of a new first time, where parents will never again hear that their child's diagnosis has no transformative treatment. This is what HOPE feels like. 

When I returned home, my two-year old son began pulling himself up for the first time and contemplating taking that first step. In the moment it reminded me of all the work that brought us to this point and of all the new friends I made at the gala that I would be sharing the video of his accomplishment. To my FAST family, cheers to the New Year and I can’t wait to see you at the next gala.

Your Friend,
Chloe Knouff
FAST Board of Directors
Thank You to our 2019 Sponsors
Watch: Gala Video
View: Photos
Replay: Live Streams
Save the Date
2020 CAN Community Challenge Launch - January 3

International Angelman Day - February 15

2020 FAST Global Summit and Gala - December 4-5
Giving Tuesday Donors