Please join us

Saturday, October 13, 2018

9:00AM Pacific Time*

*Please be sure to adjust time to your home timezone

Topics to be covered:



*Gene Therapy for GNE Myopathy

*NDF's $2.5M challenge grant (and the ways that you can help us meet our goal)

*ENMC meeting update

*Bio-Materials update from NDF's Scientific Advisors Dr. Monkol Lek and Dr. Angela Lek

They will update on what has happened with patient blood and skin biopsy samples since their arrival at Yale, the plans for what will happen next with the samples and the way in which it is part of the larger picture of therapy development. Dr. Keryn Woodman and Dr. Heather Best who performed the work will be avaialble to answer questions.

Price: Free