Fragile X & Early Intervention:

Increasing the Diagnosis and Participation of Historically Underserved Populations

October 1 @ 12 - 1 pm EST

DESCRIPTION:

Join staff from the National Fragile X Foundation for an overview of Fragile X and associated conditions. Learn how and where treatment is provided, plus a description of a long-standing CDC supported research project to better understand how Fragile X syndrome impacts families.

FACILITATED BY:

Robert Miller, Director of Clinic & International Relations, has been working, for more than five decades, with families who have a child or children with special needs, along with the professionals who work with those children and their families. He is particularly interested in how families learn about, access and receive meaningful information and services from competent professionals, organizations and institutions.

Amie Milunovich has been the National Coordinator of the Fragile X natural study since 2015. She has been in the research field for over 14 years. Prior to working at the National Fragile X Foundation, she was a Research Assistant and Research Coordinator for numerous Clinical Trials in the Nuclear Medicine Department of Sutter Hospital, and worked as a Senior Clinical Research Associate in the Pediatric Hematology/Oncology Department of Stanford’s Lucille Packard Children’s Hospital.