Hi Cure,

One of our key goals as an organization is to raise awareness and increase understanding about Angelman syndrome to the general public, and to assist our community in doing so.

That’s why we’ve implemented several resources to help educate our friends, relatives, neighbors, coworkers, and more — check them out!

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

On Sunday, May 7th at 1pm ET (New York), we invite siblings, family, and friends ages 5+ who want to learn more about the science of Angelman syndrome to join us!

FAST’s Science Director, Nycole Copping, PhD, will be hosting a fun, interactive webinar for kids to teach them about AS and the different strategies being looked at to cure it. 

Join us on Sunday for this exciting virtual event:

FAST España Foundation has been awarded by the REPUEBLO Foundation with the first REIMPULSO prize in the category of public-private collaboration. This award was given for FAST Spain’s work with their Angelman Natural History Study (NHS) and their collaboration with public hospitals in order to develop a successful study. 

We are so incredibly proud of FAST Spain for this accolade. Collaboration efforts like this are critical at the global level to help develop promising therapeutics for Angelman syndrome. The NHS and the Global Angelman Syndrome Registry (GASR) are two resources needed to understand how to accurately measure and assess the symptoms of AS over time, and how this could change after an impactful therapeutic. 

Learn more about the importance of observational studies like these and how you can take action:

Thank you to those who attended the April fireside chat! Alana and Taylor were joined by FAST staff, board members, and community members for a discussion on racial and ethnic representation in the AS community.

If you missed out, check out the summary of this chat:

FAST understands the challenges caregivers face when trying to educate and explain what Angelman syndrome is to others — at the playground, a restaurant, a social gathering, or even the emergency room, to name a few situations.

We now have information cards for the community to hand out when these situations arise, complementary for those with a US mailing address. All you have to do is fill out the form below and we will ship these goodies to you!

Fill out the form to receive free information cards now:

We’re looking forward to Learn FAST this weekend — we hope to see you and your family on Zoom!

As always, please share this link with anyone in your network who would be interested in receiving our weekly newsletter.