Reminder to Participate in an Important Myeloma Study

REMINDER!

We need your input on this important survey:

The burden of multiple myeloma on patients and caregivers’ quality of life: A Canadian real-world study

An additional 100 patient voices are needed

to reach our study participation goal.

If you have already participated in the study, thank you!

Kindly disregard this email and refrain from completing the questionnaires again.

An invitation from the PROxy Network and Myeloma Canada

Dear community,

We are writing to ask you to please use your voice as a person whose life has been affected by myeloma. Myeloma Canada, alongside one of our valued partners, the PROxy Network, is conducting an important study, and we need your input.

What is the purpose of the study?

To evaluate how myeloma impacts the quality of life of people living with the disease, as well as those who care for them.

Why participate?

Quality of life questionnaires play a crucial role in clinical research because they enable researchers to measure how a disease affects patients' or caregivers’ overall well-being as well as their ability to carry out daily activities.

Who can participate? *

People diagnosed with myeloma and myeloma caregivers who are:

18 years of age or older,
able to read and understand English or French, and
willing to sign the “Informed consent form”.

How to participate?

If you meet the participation criteria, we invite you to:

create your profile and register for the study,
read and sign the “Informed consent form”, and
complete the questionnaires.

The questionnaires should take about 30 minutes to complete. Once completed, you will receive a compensation of $20 in appreciation of your time and participation. A maximum of 300 patients can participate in the study.

STEPS TO ACCESS THE STUDY

Study number for patients: PROxy202301P

Visit the PROxy website: https://periproxy.com/en.
Click on the “Participant Portal” button at the top right of the screen.
Click on the "Register" button on the left side of the window.
Complete the fields and click "Submit".
Activate your profile by clicking on the "Activate my account" button in the email sent to your inbox (check your junk mailbox if needed).
Log in using the username and password you created.
Update your profile by adding your mailing address and phone number.
Click on the “Studies” tab on the left.
Enter the study number for patients: PROxy202301P and click "Add".
Take your time to read the "Informed consent form". If you agree to participate, sign the consent form and complete the questionnaires.

Who to contact?

If you have any questions, require further information or wish to answer the questionnaires in a paper format, please do not hesitate to reach out to the PROxy Network at info@periproxy.com or call 1-514-731-8207 ext.109.

We thank you in advance for considering our invitation to participate in this important study and hope you will share your voice for the benefit of all Canadians impacted by myeloma.

Best regards,

The PROxy Network and Myeloma Canada

*You are being invited to take part in this study because you subscribed to the Myeloma Canada mailing list and were identified as someone diagnosed with myeloma. If you never subscribed to this mailing list, please kindly ignore this message.

Myeloma Canada's promise: To improve the lives and empower all Canadians affected by myeloma, accelerate access to the best care, while supporting the pursuit of its cure and prevention.

Si vous préférez recevoir vos communications en français, écrivez-nous à contact@myelome.ca.

To donate to Myeloma Canada

please visit myeloma.ca or call us toll-free at 1-888-798-5771.

Donate here

Myeloma Canada charitable number: 862533296RR0001