Current/Upcoming
Sickle Cell Trainings & Educational Opportunities!
#1-Target audience is primary care providers!
U.S. Department of Health and Human launched
STAMP - The Sickle Cell Disease Training and Mentoring Program.
STAMP is a pilot program to train primary care providers on the basics of sickle cell disease care. STAMP is a 6-month series of free trainings delivered using the Project ECHO platform, offered during
January – June 2020
. The first training will be held on January 8, 2019 noon Eastern Time.
There is no cost to attend the STAMP training. Participants can earn continuing education units.
Click on link below for additional information.
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#2 Target Audience is Patients, Caregivers, Providers
Increasing Appointment Attendance: A Vital Opportunity to Improve Health Outcomes for Those Living with Sickle Cell Disease
Announcement language for newsletter/email/listserv
Sickle cell disease (SCD) affects approximately 100,000 Americans, predominantly those of African descent. The inherited blood disorder may cause acute pain episodes, infection and other serious health problems that can affect every organ in the body. Comprehensive and coordinated care can drastically improve health outcomes. But, according to a recent national study, a majority of patients have had to miss appointments that have the potential to improve their health and quality of life.
To better support patients and understand what causes missed appointments, NICHQ conducted a series of interviews with patients and providers. Now, we're inviting all SCD stakeholders—health professionals, service providers, community partners, patients, and families—to join NICHQ for a live-webinar where we'll share our findings and facilitate a discussion on change strategies.