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Lowering the risks of falls and maximizing independence are two crucial aspects of caring for someone with amyotrophic lateral sclerosis (ALS or Lou Gehrig’s disease). How can caregivers best support these goals for their care receiver?
Caregivers supporting someone with ALS may feel overwhelmed as they try to figure out the best way to address their loved one’s condition, including new difficulties with mobility and independent living. In addition to seeking occupational and physical therapy, caregivers can encourage their care receiver to practice simple stretches, short walks across the house, and breathing exercises to preserve muscle strength, decrease stiffness, and maintain range of motion.
Removing loose floor coverings throughout the house, as well as clearing up clutter like pet bowls and trailing cables, will also empower your loved one to move around independently. You can also minimize fall risk by leaving commonly used items in easily accessible places (ex., on the counter instead of in an overhead cabinet). I also recommend replacing dim lightbulbs and adding night lights throughout the house for increased visibility.
Assistive technology may be beneficial depending on your loved one’s needs. A cane, walker, wheelchair, or mobility scooter can lower the risk of falling around the house. Additionally, adaptive clothing – including pants with an elastic waist, Velcro or magnetic closures, and slip-on shoes – can simplify dressing for your care receiver, allowing them to get ready for the day with greater ease.
Finally, support groups for family caregivers are a crucial resource to learn from others that are also caring for a loved one. Southern Caregiver Resource Center offers a variety of free support groups for different types of caregivers – click here to learn more.
SCRC also offers an extensive virtual library of caregiving resources to guide you along your journey. The following materials may be helpful to ALS caregivers:
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