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Friends,
I've spent the last two months rattling my brain to find the right words for this note. The rhetoric that keeps coming to mind is "grateful - thankful - blessed," but that just doesn't seem to do it justice. I thought for sure that the answers would come to me in the middle of the night, a revelation waking me up around 3 AM, but that hasn't happened. I even went so far as checking a thesaurus in hopes that the words would finally come to light!
Alas, no such luck.... and I finally understand why. The words simply don't exist. There is nothing I could put into writing or express through language that could accurately describe this newfound experience of gratitude. Graham and I are both speechless! The love, prayers, and support we have felt from our church, family, friends, and community has filled our hearts with a new level of appreciation that we have never experienced, and it has lifted us up high above our worries and fears. It has truly been the most extraordinary gift amidst this difficult time.
Arthur completed his second round of IVIG this week, and he continues to show progress each day. I think it's safe to say he's improved by almost 50% since his first infusion six weeks ago, and we're hopeful that this second round will get him even closer to baseline. We won't stop until he crosses the finish line!
Once Arthur is well and our family has recovered, I plan on spending the rest of my days on this earth advocating for kids with PANS/PANDAS, so that they can receive the proper care and coverage that they deserve. I have a feeling Arthur will be doing the same. We're going to make some amazing lemonade out of this experience!
I want to hug every single one of you... and I plan on doing so! We love you all and appreciate you beyond words.
Peace,
Ada Owens (and family!)
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