- YOU DID IT!
- SHARING THE SCIENCE
- VOLUNTEER OF THE MONTH
- TEAMCCF UPDATE
- CCF AWARENESS STORE
- VOLUNTEER TRAINING AND NEEDS
- UPCOMING EVENTS
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Thank-A-Thon
A special thanks to CCF volunteers who helped us make 550 phone calls during November in order to thank our donors.
As an organization that relies exclusively on donations, CCF is extremely grateful for the generosity of our supporters and the time of each one of the volunteers.
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Over the last month, the International Cholangiocarcinoma Research Network (ICRN) published an article in the CCA News entitled "Leading the Way to a Paradigm Shift in Cholangiocarcinoma: The International Cholangiocarcinoma Research Network" to highlight the role of the ICRN in advancing the cholangiocarcinoma research and expanding the cholangiocarcinoma community. If you are interested in reading this article and getting more information, please visit the CCA News website http://ccanewsonline.com/issues/2020/october-2020-vol-1-no-2
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Each month we will recognize those whose contributions inspire us and who demonstrate excellence in their service to others. This award was created to thank those outstanding individuals and to bring to light the immense efforts, time and resources that are generously given to the Foundation. |
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Andrea, a YMCA team member, and Micheal connect at the Y in the name of cancer support. |
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Micheal is an Arizona native and while he has lived there his whole life, he certainly loves to travel the world. After serving in the military and several years of working in the auto industry, Micheal transitioned his career to aviation and is so glad he made that choice. His career has afforded him a lot of opportunities, especially with the travel he enjoys.
Micheal was introduced to the Cholangiocarcinoma Foundation (CCF), but not until after gamots of testing, a diagnosis of cancer of an unknown primary origin, and a trip to the Mayo Clinic. Andrea, A CCF patient volunteer and advocate, had shared her name and phone number on a Mayo connection site. Micheal called her and they set up a time to meet, she was local. The two met and right after one of his doctor appointments and talked for hours. She shared resources with Micheal, talked about genomic profiling, CCF, Facebook support groups and more. They continued to meet every couple of weeks. Soon afterward, Micheal began mentoring other cholangiocarcinoma patients in the CholangioConnect program, and the two created a CCF CARE Team to help educate others - a local team to educate others, offer support, and promote advocacy. Together they participated in a local conference called Aware for All, a free program that educates and empowers the public in making informed decisions about clinical research. There they both offered presentations and shared their patient perspectives. Additionally, they have also participated in the Livestrong campaign and connected with other cancer patients as support.
As a CCF advocate Micheal hopes to share the importance of advocating for oneself. Once informed, he feels patients and families may need to push healthcare teams for things that patients may feel strongly about - like scans every three months, and even surgery. As a mentor he serves to help others cope with the emotions that never go away. He remembers the difficulty of telling family and friends of his diagnosis, and he chooses to volunteer now to be the listening ear when others just need to talk. He remembers how important it was for someone to be there for him, as a mentor and friend, and he wants to help put others at ease and offer the same kind of assistance he received. He shares that his treatment is a journey. He has undergone chemotherapy, surgery, and now a clinical trial after no evidence of the disease for 11 months. He values his medical team and appreciates the options he has been given and reminds others that before option C, remember option A and B may serve one well too. It is an honor and privilege to recognize Micheal Carrel as Volunteer of the Month.
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The first virtual TeamCCF Turkey Trot Run/Bike/Walk was an incredible success. Over 500 participants joined from two countries and 36 states. Together we raised close to $45,000! Photos and videos have been pouring in all week. We loved seeing you active with your family and friends. Thank you to all who participated and a special thank you to all those that that shared wonderful photos and videos with us!
TeamCCF met its goal of collecting over 100 Turkey Trot photos, now Stacie Lindsey will prepare to take a pie to the face. Look for more information coming soon on the CCF Facebook page.
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The 2021 Bank of America Chicago Marathon has been announced for Sunday, October 10th. TeamCCF will open registration in mid December. If you would like to add your name to the list or would like more information, please contact meredith.mcguffage@cholangiocarcinoma.org.
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CCF Awareness Store
Looking for a special gift? Take a look at the CCF Awareness Store. Items include sweatshirts, winter hats, stuffed bear, 5-layer masks, jewelry, blankets, and the 2021 CCF Christmas ornament.
Remember, all proceeds from the store go directly to the Foundation.
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Call for Photos
CCF is seeking photos of cholangiocarcinoma patients with their healthcare team - including physicians, oncologists, surgeons, nurses, technicians etc.
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Patient & Caregiver Support Group Moderators
CCF is seeking moderators for the monthly online support groups currently held 1st and 3rd Thursdays at 2 pm MST.
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Giving Tuesday
Last year on Giving Tuesday, people came together on Facebook to raise more than $120 million to support the causes they care about.
This year, you can participate in #GivingTuesday by sharing a UNselfie, which tells the world why it’s important to give and support CCF.
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Donate.
- Download and print a template below or create your own.
- Take an "un-selfie"
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Upload it to your personal social media page(s) on Twitter, Facebook, and Instagram. Use the hashtags #GivingTuesday and #CureCCA. Be sure to tag the Foundation so CCF can see it. (@cholangiocarcinoma on Instagram, @curecc on Twitter, Cholangiocarcinoma Foundation on Facebook)
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This holiday season, we are asking everyone to take part in our online candlelight vigil by lighting a virtual candle in honor or memory of a loved one while making an enormous impact in the lives of others.
Double the impact:
- If you’ve been thinking about making a donation to CCF, there is no better time than right now because your gift will have twice the impact!
- All donations to CCF will be matched dollar-for-dollar up to $25,000!
- Even a small gift can make a huge difference!
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December Schedule for
Patient Support Groups,
Caregiver Support Groups,
and Educational Webinars
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2:00 pm MST, on Thursdays
December 10th - Taiho Webinar
December 24th - No Webinar - Holiday
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Jingle runners participate in Jingle For Janet, December of 2019. |
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Jingle for Janet
New virtual format! A 5K Run or 3K Walk
Registration for the 3rd Annual Jingle for Janet is now open. The event will be virtual this year so you can participate anywhere with friends and family during the week of December 21st. Sign up before December 6 and get early registration pricing! Register at
A great event to have fun, dress up, and get active for a wonderful cause!
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Light It Green For CC
Coming soon during February 2021
Help us shed some light on cholangiocarcinoma! By using the green light bulb, in place of a regular bulb, you help in sharing awareness within your community. Take a photo of your green light bulb and share with us at #CCFawarenessmonth on Instagram. February is Cholangiocarcinoma Awareness Month - a perfect time to go green for a cure. Light your home, your school, your work, your hospital, and more, to continue to shed light on cholangiocarcinoma awareness.
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