April 2023 Special Connection

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Dear Families and Friends,

Take a break and enjoy a cup of tea or coffee while looking at this newsletter. It is written just for you with information we thought you might be interested in knowing. If you need more personal help, please contact us 973-728-8744.

Your friends at ASCF

PS Check out the information on the Abilities Expo in Edison in May. We are looking for volunteers to sit at the table and tell folks about ASCF. Let Julie know if you can help. Thank you. 973-728-8744.

Join Our Book Discussion Group

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You are invited to join us on a Special Journey and exploration of a parent-friendly book on

Sunday, April 16, 6:30 pm. The book is:

"UNIQUELY HUMAN:

A DIFFERENT WAY OF SEEING AUTISM”

 by Barry M. Prizant, PhD.

 This book is for parents and caregivers who have children with challenging behaviors. They will discuss a different perspective and approach to these behaviors. If you need assistance acquiring the book, please let us know. We look forward to hearing from you.

Please register with Norma at norma@ascfamily.org

 or text her 973 5341557;

or with Julie at Julie@ascfamily.org 

or call her at 973-728-8744.

National Child Abuse Prevention Month

In April National Child Abuse Prevention Month encourages communities to educate and increase awareness of the importance of child and family well-being. Let's work together to commit to effective strategies that support families and prevent child abuse and neglect.

https://www.childwelfare.gov/topics/preventing/preventionmonth/about/

Parents and the School: A Working Team

How to Work With Your Child’s School

Children with emotional or learning challenges are entitled to support from their schools. Who should parents talk to? This suite of articles from the Child Mind Institute can sure help! It includes 6 separate briefs, with titles such as Building Your Education Team, Supporting Trans and Nonbinary Kids at School, How to Get Assistive Technology for Your Child in School, How to Make the Most of Your IEP Meeting, and About Section 504 Plans. All are also available in Spanish. Check out:

https://www2.childmind.org/webmail/908232/1210242141/b4cc2603d447571c6bfab695bfb21edca4e03eab5f37e4f806999016592a1257-

How to Help Your Child Make Friends

My Child Has No Friends

Some children are natural social butterflies. Self-confident and outgoing from a young age, they make friends with other children easily. Other children are quiet, shy or even a little socially awkward. Most kids fall somewhere in between, but it's no wonder why many parents worry about their children's friendships and ability to make new friends. No one wants their child to feel lonely or like an outcast.

Once children make their first friends, they soon learn other social skills, like how to handle disagreements and how to interpret the facial expressions and body language of others. As children get older, they face new dynamics of friendships. For example, a friend or group of friends your child was once close with may take up new interests that your child doesn't share (or vice versa). Your child may be starting a new school where they don't know anyone. Or someone your child was friends with may start hanging out with a new group of friends, leaving your child feeling alone. While such situations are normal, how can you tell whether your child is having trouble making friends or feeling alone, and what can you do to help. Go to this link for more information.

https://www.boystown.org/parenting/article/Pages/My-Child-Has-No-Friends.aspx

Kids Having Trouble Coping?

Helping Children Cope with the Unexpected

​​​​​​When natural disasters, terrorist attacks, or other senseless acts of violence occur, the randomness and depth of the destruction and harm can leave many children emotionally and physically shaken.

Major events like these can dominate conversations and the news for weeks. Sometimes the information is helpful. Other times, it might be inaccurate and inappropriate. Your children will likely form opinions and feelings about what's happened based on what they see and hear, and misinformation can heighten their anxieties. In difficult times, you can ease your child's stress by doing the following:

·     Limit media exposure. Don't obsess over the latest breaking news or inject the situation into every family conversation. Keep children away from news programs and websites that contain content that is inappropriate for their age. 

·     Talk with your children... and soon. It's likely your children will already be aware of what happened, so it's important to find out what they know and how they're feeling. Let them express their emotions and try not to tell them how they should feel. There is no right or wrong way to feel.

·     Stick to the facts. Your children may hear exaggerated or embellished versions of what happened. Don't feed into the hysteria or the fear. Use concrete terms and be brief, like you are reading about a world event from the newspaper.

·     Give your children a chance to ask questions. If they have difficulty communicating their feelings, encourage them to communicate in a way that works best for them - journaling or drawing, for example. 

·     It's okay to show vulnerability. Your children learn through experiencing and watching. They can learn how to cope simply by seeing how you grieve and manage during difficult times.

·     Continue normal routines. Routines can be comforting and help bring back a sense of normalcy.

·     Remember, children are resilient. Most kids can bounce back and work through challenges. If they continue to function well at home and in school, that's a healthy sign.

If you notice changes in your child's routine (sleeping or eating) or his or her behavior starts regressing (toileting accidents) with no improvement after several days or weeks, consult your pediatrician or contact the Boys Town National Hotline for assistance, resources and referrals in your area.

This information is included in our Guide to Parenting through Crisis.

https://www.boystown.org/parenting

SEE YOU AT THE EXPO

ASCF will be at the New York Metro Expo on May 5-7, 2023 at the New Jersey Convention & Expo Center, 97 Sunfield Avenue,

 Edison, NJ 08837

 Test drive the latest product & tech 

Conquer an all-inclusive climbing wall

Consult experts from the disability community 

Push your limits with adaptive activities 

Network with your Expo family

  Get the answers you need

HELPING KIDS LEARN

Anxiety Disorders Fact Sheet For Schools

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What Teachers Should Know

Anxiety disorders cause people to feel frightened, distressed, or uneasy during situations in which most people would not feel that way. Left untreated, anxiety disorders can make it hard for students to get schoolwork done or study. It may affect their relationships with peers and teachers, too. In some cases, students with anxiety disorders miss a lot of school days. Or they may avoid school altogether.

Common anxiety disorders that affect kids and teens are:

·        Generalized anxiety disorder (GAD). With GAD, children have many worries and worry much of the time. They may also have physical symptoms, like headaches, stomachaches, muscle tension, or tiredness. 

·        Phobias. A phobia is an intense, unrealistic fear of a specific thing. Some kids have a phobia of dogs. Others have a phobia of spiders or snakes. A child with a phobia will go to great lengths to avoid the thing they fear. 

·        Social anxiety. Kids and teens with social phobia have an intense fear of being judged. It affects them in social or other situations. They will avoid situations where they may have to meet new people or perform. 

·        Selective mutism. Some students are too fearful to talk at all in certain situations. Kids and teens with selective mutism are able to talk, and talk well. But they are too fearful to talk in some situations outside their home or with people other than friends.

·        Panic disorder. Some students have panic attacks, a sudden and intense episode of fear. They can include physical symptoms like a pounding heart, shortness of breath, or dizziness. Panic attacks can happen unexpectedly. 

·        Separation anxiety. It's normal for babies and very young children to have some separation anxiety when they are apart from a parent or caregiver. But when separation anxiety lasts beyond the early school age years, students may have trouble coming to school. 

Students with anxiety disorders may show symptoms that fit into one or more of these categories:

·        have trouble concentrating in class or completing classwork

·        feel self-conscious and avoid certain situations

·        have physical symptoms, such as a racing heart, fast breathing, tense muscles, sweaty palms, a queasy stomach, and trembling hands or legs

·        take medication to help reduce anxiety

·        may need to work with a school counselor or therapist

What Teachers Can Do

Teachers can help students by:

·        talking with parents to learn more about the student and how you can best support them

·        allowing students extra time to do work

·        learning how to coach students to self-calm with breathing and other relaxation techniques

·        giving them daily schedules

·        modifying assignments and reducing workloads when necessary

·        promoting relaxation techniques and allowing for breaks throughout the day

·        supporting parents in helping kids get to school, even if it means arriving late or adapting class schedules 

·        allowing them a safe space and ability to go speak with a counselor, if needed

·        easing anxiety in the classroom by pairing with a peer

Reviewed by: Shirin Hasan, MD Date reviewed: May 2019

go to:

https://kidshealth.org/en/parents/anxiety-factsheet.html#catfactsheet

Special Education Guide

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A Basic Guide to Special Education

 This guide is intended to be a reference for people who have questions about the laws regarding children who have disabilities that affect their ability to learn.

It summarizes the laws regarding basic procedures, services and the rights to special education, as well as other important education rights of children with disabilities, representing federal and state laws and regulations.

However, this Guide is not intended to offer legal advice, nor does it substitute assistance from an attorney.

For additional information or assistance regarding this Guide and the education rights of children, parents/caregivers should contact Nina Peckman, Esq. at Advocates for Children of New Jersey. Written materials are also available through ACNJ’s KidLaw Resource Center at www.kidlaw.org.

This Guide is available in Spanish and Spanish consultations are available. (Esta Guía es disponible en Español y se proporcionan consultas en Español.)

 Published by Advocates for Children of New Jersey 35 Halsey Street Newark, New Jersey 07102 Copyright © 2022 by Advocates for Children of New Jersey

https://acnj.org/wp-content/uploads/2022_06_24_NJ_Special_Education_Guide-1.pdf

Resource

Parent to Parent USA is a group that matches each parent with a fellow parent who has a child with the same special healthcare need, disability or mental health concern, allowing each parent or family to have a contact for sharing information, receiving support and creating new friendships. “Parent to Parent USA has local groups in almost all states, and is great for connecting families with each other for emotional support,” notes Smith. 

Parent to Parent USA https://www.p2pusa.org/

Parent Support Groups

Mom Squad Virtual Support Group.

Join this parent group with ASCF and Family Partners on Thursdays, from 6-7:30 pm.

Contact Diane Varga

dvarga@familypartnersms.org  

or call her cell: 862-273-5046

The Family Support Organization of Passaic County offers support group sessions (virtual and in-person in West Milford ) on Tuesdays from 6:30- 8 pm.

Contact Nina Reams nreams @fso-pc.org

973-979-0508.

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SPAN Special Education Virtual Series

Basic Rights

Wed, April 12, 12:00 PM - 1:00 PM EDT

https://www.eventbrite.com/e/basic-rights-in-special-education-registration-518757847687?aff=ebdsoporgprofile

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Key Components of the IEP

Wed, Apr 19, 2023 12:00 PM EDT

https://www.eventbrite.com/e/key-components-of-the-iep-registration-518788298767?aff=ebdsoporgprofile

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From Measurable Goals to Making Progress

Wed, Apr 26, 2023 12:00 PM EDT

https://www.eventbrite.com/e/from-measurable-goals-to-making-progress-registration-518812130047?aff=ebdsoporgprofile

More Information: Contact Tammi Kaminski @ tkaminski@spanadvocacy.org

SPAN Transition to Adulthood Virtual Training

Community Supports after High School 

Wed, Apr 5, 2023 6:30 PM EDT

https://www.eventbrite.com/e/community-supports-after-high-school-registration-492654341397?aff=ebdsoporgprofile

SPAN Early Childhood Virtual Mini-Conference 

ALL Kids Belong: The Importance of LRE/Inclusion

Tuesday, April 18 · 6 - 7pm EDT

https://www.eventbrite.com/e/all-kids-belong-the-importance-of-lreinclusion-tickets-512124416917?aff=ebdsoporgprofile

ASCF Science Club

Our Science Club meetings are on hold until June. We will have our schedule available as soon as possible so keep a look out for it.

This is an in person activity at Highlands Family Success Center, 1801 Greenwood Lake Turnpike, Hewitt, NJ 07421 973-506-6675.

Check out ASCF'S Podcast

Have you checked out our Mama Marias podcasts for parents and caregivers of children with special needs of any kind?

It is called Mama Marias because the two hosts are both named Maria and each has a teenage daughter with special needs. They want parents to know they are not alone…not alone in the way they are feeling, in the things they are experiencing, and in the things they are dreaming. Mama Marias aims to bring families understanding, peace, and continued hope. Check out the over 30 podcasts by clicking on the QR code on the bottom of this newsletter to our website and clicking on Mama Marias.

Please think about supporting ASCF
DISCLAIMER:
The Association for Special Children and Families does not provide or give legal or medical advice.
DESCARGO DE RESPONSABILIDAD:
La Asociación para Niños y Familias Especiales no proporciona ni brinda asesoramiento legal o médico.
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