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Often in our support group it is said, "Caregiving is the hardest job you'll ever have.” Oh my! Excuse me, but most of us did not apply for the position; on-the-job training and courses were not offered; the pay was lousy; and the hours were certainly not union grade. But. Most importantly, we found ourselves losing the companion, the loved one who, in whatever capacity, shared our space, our lives, our dreams, and our hopes. They were a part of our imagined futures. Little by little, we found ourselves taking on a role that had never been imagined: caregiver. Yes, the hardest job—mentally, physically, and emotionally. The capacity of the relationship diminished as our loved ones slowly slipped from view.
So, who exactly comprises family or informal caregivers? A check-in with Google reveals, "Family caregivers are unpaid spouses, relatives, or friends who provide essential daily care for individuals with chronic illnesses, disabilities, or aging-related needs." They manage tasks ranging from bathing and dressing to medical tasks, care transitions, medication management, transportation, and financial decisions, as well as other sundry activities and needs of daily living as required. Most families rely on this unpaid care when navigating long-term illness, Alzheimer's, or dependent physical impairment.
Caring for a loved one can be both fulfilling and overwhelming. Consequently, caregivers often find that managing daily responsibilities along with increasing personal stress can lead to burnout if not properly addressed. Family caregiver burnout is a state of physical, emotional, and mental exhaustion resulting from prolonged caregiving without adequate support. It causes chronic fatigue, irritability, and health issues, often leading to resentment or feelings of hopelessness.
Self-care is crucial given the rising mortality risk for caregivers. Caregivers, particularly those experiencing high strain or caring for spouses with dementia, face significantly higher mortality risks. Some studies indicate that 30% to 70% of older caregivers may die before the care recipient. High-strain caregivers have a 63% higher risk of death compared to non-caregivers.
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