Join the #NAIRHHANow Twitter Chat |
Since 2014, National African Immigrant and Refugee HIV & Hepatitis Awareness (NAIRHHA) Day has been observed annually on Sept. 9 at the local and regional levels. This day is about bringing attention and resources to the pressing (and often silent) issues of HIV and viral hepatitis, and their disproportionate impact on African communities in the United States. For several years, there has been a concerted effort to designate NAIRHHA Day a federally recognized health observance.
To honor the day in 2022, the Coalition Against Hepatitis for People of African Origin (CHIPO), led by the Hepatitis B Foundation, and Africans for Improved Access at the Multicultural AIDS Coalition are partnering for a Twitter chat! The chat will discuss the importance of NAIRHHA Day, as well as the reasons why it should receive national designation.
We invite you to join us! Simply log into Twitter on Sept. 8 at 4:30 p.m. EDT and use the #NAIRHHANow to join the conversation. We hope to see you there!
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Are you keen to hear about liver disease in the African region? |
COLDA invites you to join the key experts as they explore a wide variety of relevant aspects through the three-day program from Sept. 29 through Oct. 1!
Explore the presentations on hepatitis elimination, integrating hepatitis care into other health care services, and the challenges of hepatobiliary surgeries here.
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FREE RESOURCE: New Guide to Hepatitis B |
The Hepatitis B Foundation and Hep Free Hawai'i have produced a new, easy to read Guide to Hepatitis B. This is a comprehensive how-to guide for anyone newly diagnosed, or living with, hepatitis B.
You can download a free copy of the 16-page publication here and you can print as many copies as you wish!
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Consult corner: September is Sexual Health Month |
Welcome to Consult Corner, where we answer some of the most commonly asked questions!
This month's question: "I have been diagnosed with chronic hepatitis B, so can I get married?"
Yes, you can marry if you are living with hepatitis B. Please watch these short #justB videos to see how other people with hepatitis B manage relationships, children and families:
Although there is sometimes stigma associated with having hepatitis B and fear of transmission, it should not be that way. There is a safe and effective vaccine to prevent transmitting hepatitis B infection to loved ones. Be sure your future partner is vaccinated with the three-dose hepatitis B vaccine series given at zero, one and six months (there is a two-dose series available in the U.S. that is completed in one month). Practice safe sex using a condom until your partner completes the vaccine series.
Since marriage is a shared journey, so is the journey with hepatitis B. Assure your partner that you will take good care of your health, and that you will make sure to keep your regular visits to the doctor and maintain a healthy lifestyle. Also make sure to involve your partner in every step of the journey and seek their support when it comes to treatment options or keeping a healthy lifestyle.
Read more about this and other Frequently Asked Questions here.
If you're interested in learning more about topics like this, please join the HepBcommunity online forum here.
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International HBV Meeting: You can still attend online! |
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This annual gathering, which is organized by the Hepatitis B Foundation, is the world's primary meeting of hepatitis B researchers. Watch the meeting LIVE and ON-DEMAND when you complete virtual registration. Register here.
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Run4TeamHepB Runners Spotlight: Aaron Rak |
Our Run4TeamHepB is out there beating the heat and continuing to train hard for the TCS New York City Marathon taking place on Nov. 6, 2022!
We’ve been highlighting each one of our dedicated runners so you can meet the team and join them raising awareness and funds for those living with hepatitis B.
Feel free to share these posts to help get the word out!
Next up…meet Aaron!
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Who: Aaron Rak
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What: An incredible marathon runner seeking his 15th medal!
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Where: Resides in NYC
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When: Nov. 6, the 51st NYC marathon
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Why: Aaron says “It’s not too often that I get to combine my personal and professional and public health goals! Working in biotech for the past 20 years, and now with VBI vaccines, my goal is to improve public health.” We say, THANK YOU Aaron for all your hard work and dedication to our cause--both your scientific and fundraising contributions are invaluable in helping more than 300 million people living with chronic Hepatitis B worldwide.
For more info and to help Aaron reach his goal, please go here.
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Find out who won the first annual HepBCommunity.org awards |
In just its first year, hepbcommunity.org, which is a peer-led forum to support those living with and affected by hep B, has gotten off to a great start!
To encourage online conversations among participants and the scientific community, organizers recently held their first Research Showcase. Awards were offered to the four authors of the most popular research submissions and the four authors of the best questions about the research presented.
You can watch the awards video here, and dive into the Research Showcase here. We hope you enjoy the rich discussions of scientific research relating to hep B!
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Join us for a webinar on the lived experience of hepatitis delta |
Join us for an upcoming webinar to learn about the lived experience of hepatitis delta! This webinar will provide an opportunity to hear from people who have been personally affected by hepatitis delta and are either living with the virus themselves or have a loved one who is. They will share insights about their experiences, and will speak specifically to their navigation of hepatitis delta diagnosis, treatment, and management, as well as the effects of the virus on different aspects of their lives. We hope you can join us on Tuesday September 13th at 9am EDT! Register here.
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Stay up-to-date in hepatitis delta news and events |
Are you living with hepatitis delta? Or are you a provider caring for hepatitis B or D?
Sign up to join our email list to receive important news and updates, including information about clinical trials, drug updates, events, new research, and more!
We promise not to overload you with messages - only to send occasional news and relevant information about what is happening in the world of hepatitis delta. If you or a loved one are living with hepatitis delta, please fill out this survey to sign up for the newsletter today!
If you are a health care provider who manages hepatitis delta patients (or is interested in learning more about this) and would like to receive provider-specific communications from us, please let us know here. We look forward to hearing from you!
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#justB Responsible: Adama's story |
After suspecting something was wrong for a while, Adama’s mother passed away without a diagnosis or treatment. It wasn’t until 10 years later, when Adama tested positive for hepatitis B and experienced the same symptoms, that he realized his mom had suffered from the same virus. Adama is now managing his hepatitis B and receiving treatment but is concerned about the low awareness of hepatitis B in his community.
Watch Adama's video in English, French or Mandingo here.
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New "B Heppy" podcast: Hepatitis Foundation in Ghana |
In this episode, we interview Richard, Secretary of the Hepatitis Foundation of Ghana to talk about their Foundation's hepatitis B work in Ghana. We discuss their challenges, their successes, and overall, the status of hepatitis B in Ghana.
You can find the podcast episodes here or anywhere you get your podcasts.
AND, if you'd like to suggest a topic for B Heppy, please send an email to info@hepb.org.
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New Blog: What is the difference between hepatitis B and
fatty liver disease?
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Many people have trouble understanding the relationship between chronic hepatitis B (HBV) infection and Non-Alcoholic Fatty Liver Disease (NAFLD). While research studies are ongoing and the association between hepatitis B and NAFLD is indeed complex, a chronic hepatitis B infection does not cause NAFLD. It is important to understand both diseases independently of one another before studying the correlation between the two.
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Hepatitis B Foundation's publication pick of the month |
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Attitudes towards clinical trial participation among people living with hepatitis B
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The Hepatitis B Foundation conducted an online survey regarding the willingness to participate in clinical trials among people living with hepatitis B in the U.S. and beyond its borders. Statistical analyses were conducted to identify relationships between willingness to participate and demographic characteristics.
Overall among the respondents, the willingness to participate in clinical trials was high with 73% were willing, 21% undecided and only 6% unwilling to participate. Black or African American respondents showed the highest rate of willingness to participate in clinical trials (83%). The majority of White respondents (64%) and Asians (63%) also were willing to participate. The willingness to participate in clinical trials was higher among respondents living outside the U.S. (77%) and those who identified as male (77%). U.S. respondents were more likely to be undecided about their participation (34%) than international respondents.
There was a lower willingness to participate in clinical trials among those in the U.S. in contrast to those in other countries. This illustrates the need to increase the engagement with patients living with chronic hepatitis B in the U.S. and most especially with Black or African American and Asian U.S. populations.
Note: You can find additional recommendations for relevant new journal articles here.
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Sept. 18-22 - International HBV Meeting
Sept. 29 - Blumberg Institute Distinguished Speaker Seminar
James Shorter, PhD
Nov. 2 - Blumberg Institute Distinguished Speaker Seminar
Keith R. Jerome, MD, PhD
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Learn more about our research and education programs at www.hepb.org
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The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and improving the quality of life for those affected by hepatitis B worldwide. Our commitment includes funding focused research, promoting disease awareness, supporting immunization and treatment initiatives, and serving as the primary source of information for patients and their families, the medical and scientific community, and the general public. |
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Hepatitis B Foundation I 3805 Old Easton Road Doylestown, PA 18902 I
215-489-4900 I info@hepb.org
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