September 2022

Patient-Researchers Lead The Way

This month OpenNotes celebrates the work of Dana Lewis, BA—a person living with type I diabetes who’s co-first author on a randomized control trial (RCT) of treatment for diabetes published recently in the New England Journal of Medicine.  

This work is in and of itself important. But we’re excited also by the transparent, collaborative partnership that Lewis formed with traditional/academic investigators. It offers a glimpse into the future evolution of important healthcare scholarship. Both the leadership and design principles behind the CREATE Trial signal a remarkable change in the culture of research. 

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Next month Executive Director, Cait DesRoches, DrPH will be a panelist at the Grantmakers in Aging Annual Conference.

Make sure to connect with her at the Archstone Foundation Intensive Session on Optimizing and Enhancing Investments Through Technology, Tuesday, October 18. 

Register for the conference here. 

If you missed the ONC Virtual Tech Forum, it's not too late! Register for free to get access to all the presentations and breakout sessions. 

Don't miss Cait DesRoches, DrPH representing OpenNotes in Breakout Session I Option I: Availability of Social Determinants of Health and Health Equity Related Data.

• Embedded Bias: How Medical Records Sow Discrimination, Kaiser Health News, Tahir D. 

• Milk-Alkali Syndrome: How Electronic Medical Record Open Notes Helped to Rule Out Cancer, American Journal of Case Reports, Rizk M, Abourizk N, Kovalenko I, et al. 

• Patient Design: The Importance of Including Patients in Designing Health Care, JMIR, Mesko B and deBronkhart D. 



• Writing Clinical Notes: Have We Made Progress? Family Practice Management, Schrager S.