September 2022

Patient-Researchers Lead The Way

This month OpenNotes celebrates the work of Dana Lewis, BA—a person living with type I diabetes who’s co-first author on a randomized control trial (RCT) of treatment for diabetes published recently in the New England Journal of Medicine.  

This work is in and of itself important. But we’re excited also by the transparent, collaborative partnership that Lewis formed with traditional/academic investigators. It offers a glimpse into the future evolution of important healthcare scholarship. Both the leadership and design principles behind the CREATE Trial signal a remarkable change in the culture of research. 


Pilot Launches: OurNotes for Care Partners

OurNotes for Care Partners aims to identify care partners, assess their needs, and offer practical resources to alleviate stress and offer support through the Caregiver Intensity Index. This pilot intervention is launching at two sites this fall.

Read more about this project >>

Learning Collaborative: Shared Access to the Patient Portal for Older Adults 

The second quarterly meeting of our new learning collaborative on patient portal use for older adults and care partners will take place Wednesday, November 2, 3-4pm EST.

We welcome health care organizations and staff, professionals, patients, clinicians, vendors, and care partners to join us in creating patient portal-based solutions to help older adults and their care partners get the information they need.

Register to attend >>

Dr. DesRoches at Grantmakers in Aging

Next month Executive Director, Cait DesRoches, DrPH will be a panelist at the Grantmakers in Aging Annual Conference.

Make sure to connect with her at the Archstone Foundation Intensive Session on Optimizing and Enhancing Investments Through Technology, Tuesday, October 18. 

Register for the conference here

Watch on-demand: ONC Virtual Forum

If you missed the ONC Virtual Tech Forum, it's not too late! Register for free to get access to all the presentations and breakout sessions. 

Don't miss Cait DesRoches, DrPH representing OpenNotes in Breakout Session I Option I: Availability of Social Determinants of Health and Health Equity Related Data.

What We're Reading

Tweet of the Month

Check out this Twitter thread full of examples of patients finding uplifting or humorous content in their clinician notes.

We love to see it.