Events | Research Center | Phantom Tea & Wine

September Happenings!

 

Starfish Soiree and Golf Tournament

The 20th Anniversary of the Golf Tournament did not disappoint with over $75,000 raised and 108 players on the Golf course on Friday 27th September. It was beautiful blue skies, and the sun was shining on a great group that included many of our Chromosome 18 families.  The Starfish Soiree on Thursday 26th had almost 150 people attending and was a wonderful evening at Oak Hills Country Club. As these events continue to grow in popularity Thank You to our Golf Chairs Jim & Claudia Traa and Starfish Soiree Chairs of Lisa Gurwitz and Claudia Traa.

Soiree Photos
Golf Photos

Chromosome 18 Legacy Giving

The benefits of a planned gift to Chromosome 18 are immeasurable by enabling you to support Chromosome 18 and strengthen our mission. Planned gifts can provide material benefits to you — benefits such as lifelong payments, charitable tax deductions, and more. Being a member of the Legacy Society gives you the opportunity to belong to a select group of like-minded people who are committed to support the needs of our families.

Learn more

Regional Events:

California Regional Family Picnic in the San Francisco Bay Area on October 13th. Sign up here!

Events

Chromosome 18 Champions

By making a monthly commitment, you will create a sustainable impact that will help us provide essential programs and services for our families, as well as, fund research that directly improves the lives of individuals affected by chromosome 18 conditions.

Become a Champion

Chromosome 18 Clinical Research Center

The Chromosome 18 Clinical Research Center was honored as a recipient of a $7500 grant from the Cowden Family Foundation in September!

September Facebook Live

Every month on the 18th at 6PM CT C18 goes live! Click here to watch the Facebook live with Dr. Karkar from the Clinical Research Center.

Learn more!

World Chromosome 18 Day is December 1st!

The 3rd Annual World Chromosome 18 Day is back! Couldn't make it to Conference this year? Or did you join us for Conference and want more?" World C18 Day is just around the corner! Join us for this virtual, one day "mini-Conference" with educational sessions with medical experts, syndrome breakout groups, and of course, a holiday dance party! See you December 1st for this global event!

 

Regional Cornhole Tournament: Thank you Borello Family & all our Sponsors!

Thank you Telles Family!

Welcome to the Chromosome 18 Family!


Jessica Wills, 18p-, Mid-Atlantic

Nikita Wells, 18p-, West

Silvania De Oliveira, 18p-, Mid-Atlantic

Matthew Ricketts, Ring 18, United Kingdom

David Knox, 18q-, South Central

Alinoos Papadakis, 18q-, Greece

David Friess, 18p-, South Central

Tara Beown, 18p-, United Kingdom

Christopher Racine, 18q-, West

Alexandra McClain, 18q-, Mid-Atlantic

Dee Rountree, Trisomy 18, Southeast

Thank you and Happy Birthday to Sarah Geisert, Lillian Darnell, and everyone who celebrated their birthdays with Chromosome 18 through Facebook Fundraisers! 

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