How Has the COVID-19 Outbreak Affected Parents
Caring for a Child with a Rare Genetic Diagnosis?
Families with ASD and a rare genetic disorder may experience unique challenges during the COVID-19 outbreak. Access to both educational and essential medical services are being dramatically disrupted.
ASF is partnering with Patient Advocacy Groups and the Caring Clinic at UCLA to gather experiences from families across the world through a new survey. The survey will ask about experiences and service utilization in order to better target interventions and support for families in need. The survey will take 10 minutes to complete. Scientists want to gather families input as soon as possible, so please fill it out and circulate widely.
For more information and how to participate, click here.